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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. P

    Post-sex exhaustion

    Hi Chiron, hope you are doing okay. Are you able to orgasm without ejaculating? I believe ejaculation is depleting even for very healthy men but you can learn to separate the two. I am a virgin woman so I am not speaking from experience
  2. P

    Need recommendations for very soft sheets that breathe

    Bamboo? Seriously (don't know how much they cost though)
  3. P

    Tired of being single

    Hi Misfit toy, I don't know (zero relationship experience) but I guess a lot of men would like no strings attached kissing/physicality. Whether it is a good idea or not (I guess not) I don't know. I am feeling so much better and now what I want is to hold a man in a sexual way, not even...
  4. P

    Has anyone had any experience with Seka Nikolic?

    Forget the negativity in the last post. I am back on a remarkable upswing. Actually my experience with homeopathy involved downswings at the beginning as well
  5. P

    Homeopathy

    Hallo filfla, my two cents: homeopathy is powerful and you should not keep giving the remedy. I think that can make you quite ill. One dose is enough
  6. P

    Has anyone had any experience with Seka Nikolic?

    I saw her last week (for chronic hunger, I don't suffer from ME). It was remarkable, on the third day after seeing her I put my hand over my stomach and the tension and hunger dissipated like that. I felt as if I had been cured and as if I had reached enlightenment (I understood a lot of...
  7. P

    Supplements do not have any real effect on symptoms

    Thanks Kathevans, I have. Best £50 I ever spent.
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    Supplements do not have any real effect on symptoms

    Dear Kathevans, No fires ; ) I didn't believe in it myself. But it's like you say about the energy work - amazing, weird, profound. I'm not talking about the sugar pill version of the UK. Good old Hahnemann-Kent-Hering classical homeopathy practised in India. They insist on single dose...
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    Supplements do not have any real effect on symptoms

    Dear Leokitten The definition of stupidity is to keep doing the same thing and expect a different result. Supplements have not helped me, although I love the Budwig mixture. Mould avoidance (camping at the seaside and taking cholestyramine or chlorella) made me feel like a different person...
  10. P

    How did your ME start?

    I am a bit frightened because my health is declining. My brain is failing, and episodes of breathlessness (at rest) are becoming more frequent. I am 27 and well off. I would be very grateful to hear anyone's experiences of how their ME started.
  11. P

    doctor for gut & mould

    Thank you Sushi, may I ask if mould was a problem for you and if so what treatment de Meirleir recommended. Does he treat for parasites?
  12. P

    doctor for gut & mould

    I did the test with LabCorp because it was what Dr Shoemaker's office recommended. It is the HLA test which used to be number 012542 (now has a new number)
  13. P

    doctor for gut & mould

    Sushi may I ask what tests De Meirleir did? I would like to have melanocyte stimulating hormone tested, but I think its only available in the US
  14. P

    doctor for gut & mould

    Minks I am in the UK so I did the genotype test by post. I asked the lab (Quest? Labcorp? can't remember) to post me the kit and then I posted it back to them.
  15. P

    doctor for gut & mould

    I don't have CFS. My problems are hunger and brain fog. I have blastocystis hominis, candida overgrowth, bad bacteria and a shortage of good bacteria in my gut. I have a mould susceptible genotype (4-3-53). I would be very grateful to hear your experiences of different doctors. Is De...