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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. L

    detox profile results

    Hi I had this test done at 23andme It's a sliva test. The test takes approx six weeks from date of order. Hope this helps Thanks Lisa x .
  2. L

    detox profile results

    hi all thanks for your advice i have now managed to download my detox profile. many thanks lisa x CYP1A1*2C A4889G rs1048943 TT -/- CYP1A1 m3 T3205C rs4986883 TT -/- CYP1A1 C2453A rs1799814 GG -/- CYP1A2 164A>C rs762551 AA -/- CYP1B1 L432V rs1056836 CG +/- CYP1B1 N453S rs1800440 CT...
  3. L

    I finally have my 23.me results

    Hi Many thanks for all your Information. Can anyone explain CBS and what this is ? This is all so new to me and very daunting. I have tried low doses of folate and b12 and they all cause horrific side effects to the point where I am so bervous to take any supplements. Many thanks Lisa. X
  4. L

    I finally have my 23.me results

    Hi everyone Thank you so much for all your replies. I originally had the test done as I have severe reactions to lots of supplements and its quiet severe. I have tried folate and also b12 but these make me hallucinate. You mentioned the detox profile is that an additional cost as I can't...
  5. L

    I finally have my 23.me results

  6. L

    I finally have my 23.me results

    hi many thanks for your help on this. I think i have managed to download my results but not to sure as this is right as computers are not my strongest point. Please see below Gene & Variation rsID Alleles Result COMT V158M rs4680 AA +/+ COMT H62H rs4633 TT +/+ COMT P199P rs769224 GG -/-...
  7. L

    I finally have my 23.me results

    Hello everyone As you know I have been waiting for hear for quiet a while. I now have these but the results mean nothing to me. I said I would post these to see if anyone can offer some advice. Does anyone know how I post these as the Information is online and what information should I post ...
  8. L

    High IL-2 Levels

    Hi I am Lisa I have a sever thyroid problem an yes since being diagnosed I have never been the same. I have tried many supplements and they all send me to a manic depressive state that's why I have joined this board as I believe I have a methylation problem and I hope once I have my 23.me...
  9. L

    My anemia problem again shocking results

    Hi all Many thanks for your replies everyone always takes time to answer my posts, so a big thanks. another doctor did mention a blood transfusion but my usual doctor has refused me this as I have a reaction to many supplements therefore worried what the side effect of having too much iron on...
  10. L

    My anemia problem again shocking results

    Hi all I know it's hard to solve the resolution until I get my 23.me results back (got the test today) but I have had my iron panel done again and the results are shocking Ferritin 2 Iron 1 My doctor does not seem concerned as they have said its low and that's and told me to iron...
  11. L

    I have just bought the 23.me test

    Wow thank you all for your fantastic input. I am hoping it can help me as much as everyone else. Methylation is so complicated so at least I have a starting point Hi Helen thanks for your response also, unfortunatey I have tried b12 along with folate but again I get the same reactions. Palps...
  12. L

    I have just bought the 23.me test

    Wow thank you all for your fantastic input. I am hoping it can help me as much as everyone else. Methylation is so complicated so at least I have a starting point Hi Helen thanks for your response also, unfortunatey I have tried b12 along with folate but again I get the same reactions. Palps...
  13. L

    I have just bought the 23.me test

    Hi everyone I have just finally purchased this test after saving all month. I am wondering if anyone has any feedback on this test and has it helped you. I have a lot going on with hypothyroidism low ferritin and extremley low iron but can not tolerate iron due to hallucinations and high...
  14. L

    Heavy metal detoxing

    Hi Sorry I forgot to ask caledonia. What is the gut rebuild programme ? Is this a test you can have ? Many thanks Lisa x
  15. L

    Heavy metal detoxing

    Hi everyone' Many thanks for all your responses it is greatly appreciated. I was told Epsom salts was good for removing heavy metals as always I have paid a fortune for a practitioner to tell me to take the epsom salts and I have had a reaction and a the praritioner wants another fee to...
  16. L

    Heavy metal detoxing

    Hi all I am using Epsom salts to metal detox after 6 years ho i had 6 silver fillings removed. I am using a spoonful only of Epsom salts in the bath but The next day I have very very high snxiety and vivid nightmares. Is this normal using so little. My history seems to be repeating on me as I...
  17. L

    Can food cause disruption to methylation cycle

    Hi I am in the early stages of learning about methylation, me, cfs etc I have ordered the 23.me test but I have sever reactions of anxiety when taking any Kind of vitamins. As I am folate deficient and anaemic I had a veg smoothie yesterday am desperate to feel well and though this would...
  18. L

    Cognitive- Do you forget what you learn because of CFS?

    Hi My name is Lisa I am new to this board so sorry i can not offer any helpful advice. i am currently going through the same thing I have trouble reading and I am 33 and resorting to hire a tutor o help me back on track. I would love to hear any advice also. Thanks Lisa x
  19. L

    I'm falling apart - can anyone help

    Thanks , I am really nervous re the iron infusion just in case I have a reaction like all the other meds, il keep my fingers crossed. Can I ask when your ferritin was so low did you feel pains and twinges especially in your arms and legs and chest area. Thanks Lisa x
  20. L

    I'm falling apart - can anyone help

    Hi Yes I think I need to deal with the anemia ASAP. I am back to the gp to make my decision regards to the iron infusion, iI think that will be quicker to get my levels up. I will also try the liver. Thank you for all your support and will keep you all updated. Thanks Lisa x
  21. L

    I'm falling apart - can anyone help

    Hi thanks Thanks for your quick response its much appreciated. I have never taken any liver support before, I am taking a probiotic supplement an see to be ok with that. Is liver support milk thistle ? I am feeling very stressed regarding the weeding but I think it seems to be accelerating...
  22. L

    I'm falling apart - can anyone help

    Hi I posted a thread last week and since then I have ordered the 23.me test. The thing is I feel like I am Falling apart. Yesterday I had a reaction to my usual makeup therefore I took an antihistamine tablet and I woke up today to find I feel how I feel after taking b vitamins and ssri ,s. I...
  23. L

    My story please can anyone help

    Wow thanks you for all this information so quickly what a great help. Now I have a starting point at least. I am here in the uk and will update my profile. Due to my severe iron deficiency my gp has ordered me to have an iron infusion, I am very concerned at the side effects this is going to...
  24. L

    My story please can anyone help

    Hi I am new to this forum and wondered if I could gain any advice. Like everyone I have a long story of struggle and this is my last attempt to try and get some answers. Il try and give you as much information as I can without rambling on too much. I developed hypothyroidism 12 years ago...