• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. L

    Joshua Leisk Protocol

    Hi, Inonsine takes a while to help modulate the immune system and their is a protocol of 5 days on at 500 mg, followed by 500mg twice a day the next week. Alternate for 3 months and then take 2 weeks off and restart. I would also suggest checking URIC Acid levels before and after 3 months...
  2. L

    Purported cure for Latent Virus sustained ME/CFS by Joshua Leisk and Aline Nocon

    Glad to hear they are working for yo. Me 5 months on Famvir and I feel like I've barely made any progress. I will start to feel a little better then get absolutely crushed again. Have you tried adjunct therapies while doing the anit-virals (arteminisin, laruidcin, olive leaf) ?
  3. L

    Purported cure for Latent Virus sustained ME/CFS by Joshua Leisk and Aline Nocon

    DR Rey is a CFS specialist with Nancy Klimas group out of Nova SouthEastern University in the Miami/Fort Lauderdale area. They had been doing Famvir, LDN, and Immunovir, but now they seem more focused on Liposomal Glutathione and LDN and possibly Immunovir. I was/am a patient of hers for many...
  4. L

    Purported cure for Latent Virus sustained ME/CFS by Joshua Leisk and Aline Nocon

    Hi Learner1, Thanks for the feedback. I will try to answer your questions in order. 10 years ago when my MAJOR crash occurred, I attribute it to overdoing it with exercise (and I still don't understand why that would lead to have basically no NK cell activity and number). This I was able to...
  5. L

    Purported cure for Latent Virus sustained ME/CFS by Joshua Leisk and Aline Nocon

    Hi, I have not done PCR tests for the viruses unless you count VIOME which I find largely useless and we had a discussion last night on the ME/CFS Facebook support group where someone who had positive titers IGM for the Herpes Virus also had PCR test which were all negative. I am on Famvir as...
  6. L

    Purported cure for Latent Virus sustained ME/CFS by Joshua Leisk and Aline Nocon

    Thanks for the feedback trier. I have moved up to even higher dosages of the lions mane and egcg and oat bran figuring that might induce more immune like symptoms, now I think I will have to reconsider. I am also looking at adding in Equilibrant or Oxymatrine for the coxsackie as well as DIV...
  7. L

    Purported cure for Latent Virus sustained ME/CFS by Joshua Leisk and Aline Nocon

    Hi, I have tried to find a good place to share my results of this and to communicate with Joshua and possibly get some feedback on my lack of success with the HADS ME/CFS protocol 3.2. This will be the short version and if anyone has any questions I will be glad to assist. I went from my best...
  8. L

    Should I fly to Africa to get Suramin?

    Hi, I like the plan. Its seems much more rewarding then getting 50g and injecting it in to a vein. In the meantime, here is some good commentary from the autism community. Let me know when the flight is scheduled for. https://www.autismweb.com/forum/viewtopic.php?t=34496&p=226664
  9. L

    Active B12 Protocol Basics

  10. L

    Active B12 Protocol Basics

    Maybe, you can answer a few questions then. How long did your methylation process take? When going through the process, how and when did you decide to increase the amount of the supplements? Where did you get injectable MB12? How long does folic acid and folinic acid block methylfolate?
  11. L

    Active B12 Protocol Basics

    Thanks for the advice. I don't know how to change an old message.
  12. L

    Active B12 Protocol Basics

    Fredd are you available for phone consults?
  13. L

    GcMAF Poll

    Is GCMAF only used for XMRV?
  14. L

    Active B12 Protocol Basics

    Hi Holly, Thanks for the document, it was having trouble with google docs and a pop-up window. What you sent is basically what is at the beginning of this thread. There have been more discussions and potentially more revisions in another thread with several thousand entries - which I have...
  15. L

    Active B12 Protocol Basics

    Hi, I can't access the document.
  16. L

    B-12 - The Hidden Story

    Also, what is a paradoxical folate deficiency and what are the symptoms. I am sure it is somewhere in this thread, but perhaps you can answer here.
  17. L

    B-12 - The Hidden Story

    Hi, I have had CFS for 16 years, but only in the last 7 months have I really learned how bad it can be. I am trying to crawl out of the basement, but 2 months ago, my foot started going numb along with all of the other issues, low energy, poor sleep, depresssion, anxiety, messed up immunue...
  18. L

    Active B12 Protocol Basics

    Hi, I have had CFS for 16 years, but only in the last 7 months have I really learned how bad it can be. I am trying to crawl out of the basement, but 2 months ago, my foot started going numb along with all of the other issues, low energy, poor sleep, depresssion, anxiety, messed up immunue...