• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. mirshine

    Muscle pain

    I have lots of muscle and nerve pain. So far rest is the only thing I've found to not make it worse.
  2. mirshine

    Peanut-allergy cure close after Australian breakthrough

    Wow! Great news though. My daughter is allergic to peanuts. And all other nuts. And egg And pulses :rolleyes: I wonder if it will be tested on other allergens. Thanks for.this.
  3. mirshine

    Extremely itchy vagina OMG

    Probiotics are a great help. Good ones like udos 8 or solgar 40+ And eating live yogurt Not sweetened with anything.
  4. mirshine

    How often do you cry?

    I think I get upset and tearful quite often, but not actual crying. But I do still cry more than I would have before
  5. mirshine

    Lyme Specialist

    Thanks @wherearemypillows I'm nervous about the herxing, reacting to the bacteria dying off. And of course if it'll actually make any improvements at all! But still, major step.
  6. mirshine

    Lyme Specialist

    Tomorrow my appointment with the Lyme specialist will have finally arrived. When I sent my bloods off to Germany in March, they came back positive for Lyme and co infections. And a very low immune system. I don't know if I "only" have Lyme (I'm pretty much house bound and need a walker to get...
  7. mirshine

    Is Poop Doping the Next Big Thing?

    How does it work?! Like artificial insemination except the other um entrance? And do they have to remove your own poop first? Very interesting. I'd say they're onto something
  8. mirshine

    It's worth living like this?

    Big hugs. It sucks. But yes, it is worth it. Try to find even the smallest good thing in a day. And there might yet be a cure. Hang in there
  9. mirshine

    Need help if you're sitting most of the day

    I find either my back, raised up slightly. Or kind of in the recovery position if that makes sense, except with opposite arms. So the arm in front of my face tucked under the pillow and the behind arm down. My pillow down instead of across, so under my head but also down under my chest to give...
  10. mirshine

    Need help if you're sitting most of the day

    How does that work GG?
  11. mirshine

    Need help if you're sitting most of the day

    I found that putting two tennis balls inside a sock and tying a knot in the sock, with the tennis balls tight together helps. Although it is sore to do! You lie on the floor and give the space between each vertebrae a turn. One ball either side of your spine. It really eases things out. I...
  12. mirshine

    Pain sucks

    Thanks @hellytheelephant
  13. mirshine

    Symptom Exacerbation from hunger

    Me too!
  14. mirshine

    Balance issues?

    I take b12 tablets that melt under my tongue. If I come off them for a week I start falling over.
  15. mirshine

    Pain sucks

    Thank you :hug:
  16. mirshine

    Pain sucks

    All the usual muscle and nerve pain with a new skin sensitive pain too. And I did something to my neck. I'm just whinging.
  17. mirshine

    Pain sucks

    That's all. It just sucks.
  18. mirshine

    May/June magic... how does it work?

    I'm the opposite! The heat and humidity (and I live in Ireland so it doesn't really get too bad relatively speaking) kill me off altogether
  19. mirshine

    Struggling :-(

    @Jemima37 I am so so.sorry that you ha e had to go through such trauma. Especially from family. This absolutely is a safe place to vent. I have no advice, but I send hugs :hug:
  20. mirshine

    Left side...very scared

    Hey @Chugi can you let us know when you get to the doctor? Just worried about you
  21. mirshine

    Weak lead legs?

    I constantly overdo things. It's just imlossible to pace properly with a young family.
  22. mirshine

    Weak lead legs?

    Hi Julie. Sorry to hear about your crash. I.get those symptoms too, but with pain also. The only thing that helps.me is rest. It's so frustrating. And yes, it's not just physical activity that causes my crashes, emotional, mental or over sensory things cause it too Hope your crash doesn't...
  23. mirshine

    Who to talk to?

    ありがとうございました I hope this is right!
  24. mirshine

    Who to talk to?

    @IThinkImTurningJapanese if everyone thought that way and respected others the world would be a very different place :):star:
  25. mirshine

    A Town Designed for ME/CFS Would Have...

    A live in care centre for those who struggle to be independent. Or assisted living housing but with all the above specifications. With a quiet little coffee shop for when we feel able to talk or mingle. And a beautiful garden. Near the sea. Ahem, may be running away with myself!
  26. mirshine

    Weakness in arms

    I have no advice re supplements but my arms are very weak too. They get worse when I overdo it or if I'm in a crash etc.
  27. mirshine

    Stomach in your throat

    I get something like this when I'm upset or overtired. I find tea helps! But that might be an Irish "sure a cuppa tea helps everything" thing :thumbdown: It really does help though!
  28. mirshine

    Who to talk to?

    Thank you @Shoshana you are one of the kindest most thoughtful people I have "met" I love reading your responses, so impressed by your generous spirit xx
  29. mirshine

    Who to talk to?

    @confetti11 sending you hugs :hug:
  30. mirshine

    Who to talk to?

    http://forums.phoenixrising.me/index.php?threads/skype-companions.49086/#post-808934 I hope this works. I'm not very good with technology these days!