• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. B

    Any treatment for nasal Staph Aureus infection?

    My credit cards are one the fritz but I have paypal, would anyone please be willing the tp purchose and ship the vaccine to my addreess? I will paypal your the amount plust $20 for your services. Please help me someone, thank you very much.
  2. B

    What do you take for joint pain?

    Hi all, I was hoping to ask what you all took for joint aches/headaches. I've had joint aches and headaches basically constantly since becoming sick over a decade ago and have tried to tough it out and not take anything for it, but now recently it's gotten to the point that I have to take...
  3. B

    Question for people in the US - which research organization would you donate to?

    Your profile has limited access; I can't see any way to PM you. I would donate to either the CFIDS Association's research program, Simmaron Research or the Chronic Fatigue Initiative. Research projects funded by the CAA's research program have brought in almost $5 million dollars in...
  4. B

    New video: Is acetylcholine toxicity the cause of CFS?

    I noticed something a while back that potentially deals with acetylcholine- I noticed that whenever I ate potatos I would get really tired the next day, even on top of how tired/sick I am already, with the skin especially making me ill. It turns out potatos are a big source of solanine, which is...
  5. B

    What kind of bed do you have?

    I have a futon that lays low to the ground. I had an alright mattress but it was old and it started sagging in the middle so my back started hurting bad. What is great to do is to get blankets, sleeping bags, etc. and put on top of a firm mattress and under the sheets. It is pillow soft but firm...
  6. B

    energy-saving hygiene habits (or lack thereof)

    For bedsheets, I recently bought a sewing machine off Craigslist and sewed a topsheet in half sideways to make a sleeping bag type thing and I put that in between the sheets. Now instead of changing the sheets (or rather not changing them, as you all know) I'm planning on just pulling out the...
  7. B

    PACE trial irregularities

    Delete, sorry.
  8. B

    Project ENOUGH!!!

    Regarding how the CAA has and continues to challenge the CDC's CFS research program; here are some really good examples. The first is the CAA's response to the CDC's proposed 5 year plan; it's a real doozy. The second is Kim McCleary's testimony to the CFSAC regarding CDC's wasteful spending...
  9. B

    Chronic controversy continues over mysterious XMRV virus

    Here's a new article in Nature Medicine, anyone got access to fulltext? If so, please pm me. Thanks. ---------------------------------------------- Chronic controversy continues over mysterious XMRV virus Elie Dolgin Nature Medicine 16, 832 (2010) doi:10.1038/nm0810-832a...
  10. B

    Xenotropic murine leukemia virus-related virus: current research, disease association

    Someone mentioned it a while back on another list, but avoiding soybeans decreases my headaches a bunch. Soybean oil is in a lot of stuff and avoiding it also helps a ton with my joint aches. Same thing with soy lethicin. Partially hydrogenated vegetable oil gives me brainfog on steroids and...
  11. B

    Comment by 'being' in 'XMRV - Hope and Caution'

    ..........
  12. B

    Low dose Naltrexone

    Thanks, That's pretty much what I'm thinking of doing too, except in 1.5mg increments, which is what my pills are. What dosage are your pills? You mention half a mg, do you take several .5mg pills? I'm trying to think of ways to maximize the money aspect, I've read some stuff about making...
  13. B

    Low dose Naltrexone

    What is everyone's experience with what time you take LDN? For a long time I read that people take it at night before they go to bed, then recently I think I remember reading someone saying that it didn't matter when you take it. Also, is there any correlation with insomnia and being a...