• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Mast Cell Diagnosis?

    Hi Valentijn Thanks for the detailed reply. I'm trying to work out whether it's a CFS/ME thing, or whether it's more a mast cell issue. Most of my earlier symptoms have settled down, but do CFS/ME people often get mouth sores, swollen pale tongue with teeth marks, burning mouth/tongue, tinitus...
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    Mast Cell Diagnosis?

    Hello For 8 months I've struggled with a range of health issues with literally every kind of test revealing no diagnosis (range of bloods, xrays, ultrasounds, CTs etc). The range of symptoms are those which I've read are associated with mast cell issues. The specialists have concluded it must...