• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

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    Open Letter from a ME-sufferer to a so-called specialist in the field of ME....

    Open Letter by an ME/CFS patient to Dr. Em. B. Van Houdenhove The following Open Letter was written by an ME/CFS patient, who came upon her story in Professsor B. Van Houdenhoves book Moe in tijden van stress (Tired in Times of Stress). Her consent was never sought and she was not aware...
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    belgian national protest action on 14th march!

    Frank, will you be there with your banners??? that would be super!
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    belgian national protest action on 14th march!

    national ME/CFS action in Brussels on the 14 of march! for more information, see : https://sites.google.com/site/nationalecvsprotestactie/english-version
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    article:"the PACE-trial:do you also get so tired of this?" by M.Van Impe(Belgium)

    Translated from Dutch : de Pace Trial : Wordt u hier ook zo moe van? written by the Dutch medical journalist Marc Van Impe The PACE trial: do you also get so tired of this? From the very beginning it was obvious that the outcome of the UK PACE study, published in The Lancet last...
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    The belgian fight in the press : CFS is a rubbish-dump. the battle for the cfs patien

    are'nt you shocked that the response of the medical journalist, who's defending the biomedical approach, was denied first? The newspaper would not publish it! he had to rewright is... and the third post was published in the paper and on their online-paper (but after few hours it was already...
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    The belgian fight in the press : CFS is a rubbish-dump. the battle for the cfs patien

    No imaginary illness Image of CFS is disastrous for patients written by : Marc Van Impe - Belgian journalist “Over the past fifteen years, quite a few misconceptions have deliberately been sent around the world", writes MARC VAN IMPE. He both explains and suggests why this may have...
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    The belgian fight in the press : CFS is a rubbish-dump. the battle for the cfs patien

    Opinion by medical journalist Marc Van Impe, in response to the article "CFS is a dumping ground” (Belgian newspaper" De Standaard "dated 24/01/2011 - translated from Dutch original) (This opinion was not published in the press) "CFS is a lie” In an article entitled “The battle over...
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    The belgian fight in the press : CFS is a rubbish-dump. the battle for the cfs patien

    "Chronic fatigue is a rubbish-dump. The battle for the CFS patient." (translation from Dutch) CFS in Belgium. Translation of an article in a major Belgian newspaper, 'De Standaard', today Jan. 24, 2011 Original (Dutch)...
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    ME/CFS docter Dr. Vermeulen R.C.W. suspended

    Thanks Sacha for explaning this!!! This is the truth about drs Uyttersprot and Coucke in Belgium! Two Belgian doctors who treated thousands of CFS/ME patients in recent years have been fined by the Administrative Court of Inami, the Belgian National Health Insurance Institute to a penalty of...
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    ME/CFS docter Dr. Vermeulen R.C.W. suspended

    Please can you delete this message svp? As a patient of one of the two Belgian doctors, I'm shocked that you compare the suspension of dr. Vermeulen with the belgian situation!! thanks a lot, hilde
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    Help Belgium doctor - sign petition

    thanks a lot!
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    sign our petition : Dr. Uyttersprot wrongly penalized!

    She is a Great doctor!!! thanks for signing!!!
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    sign our petition : Dr. Uyttersprot wrongly penalized!

    thank you for the signature and the link!!!
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    sign our petition : Dr. Uyttersprot wrongly penalized!

    who can help us to support the belgian cfs-doctor Uyttersprot by signing the petition : http://www.ipetitions.com/petition/steundokteruyttersprot/ This doctor is fined for prescribing TPN and gammaglobulines to cfs/me-patients and has to pay a huge fine immediately. But we (her patients) feel...
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    sign our petition : Dr. Uyttersprot wrongly penalized!

    today we have 500 signatures.... can you help us to get more? tnx !
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    Gluten and autonomic problems

    I have coeliacie... in the beginning it was very hard and difficult... but I'm used to it now... I find out that there are many things you can eat, by replacing some ingredients by glutenfree ones... don't give up! Hilde
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    sign our petition : Dr. Uyttersprot wrongly penalized!

    very good! thanks a lot
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    sign our petition : Dr. Uyttersprot wrongly penalized!

    signatures from everywhere in the world can help us!! tnx!
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    Belgian National Health Insurance Institute submit two CFS/ME doctors penalty

    We (patients of those doctors) try to support them as much as possible, we plan some actions, started a petition, http://www.ipetitions.com/petition/steundokteruyttersprot/, write letters to the government, press etc.. we don't let them down.... you're support is welcome! you can become...
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    sign our petition : Dr. Uyttersprot wrongly penalized!

    A Belgian specialist in the field of ME/CFS, dr. AM Uyttersprot is being fined for the prescription of (expensive) total parenteral nutrition (TPN) and immunoglobulins to ME/CFS-patients. She has to pay an incredible huge fine immediately. It needs to be said that patients receiving these...