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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Article Dec 23rd 2017: Aussie scientists discover CFS is real and may be treated with CCBlockers.

    Theres a comment on the article: 'This is not exactly new, as far as treatment goes: "Chronic Fatigue Syndrome: Possible Effective Treatment with Nifedipine", American Journal of Medicine, Dec. 1988. '
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    Dr Naviaux's Suramin & Autism Trial - publication and interview

    Looks like another group have researched Suramin too. http://slideplayer.com/slide/8926218/
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    Economist Article: Blood Simple?

    Great reply to Dr Mead!!!!
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    Dr KDM rifaximin

    Hey @trickthefox, hope you are doing ok! Just found this interesting interview with Dr Driscoll, talking about here experience with these issues and her latest research, http://thelowhistaminechef.com/dr-diana-driscoll-interview-vagus-nerve-and-potsmast-cell-activation/ I found this really...
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    Antibodies to ß adrenergic and muscarinic cholinergic receptors in patients with CFS

    Hip, in realation to your comment about VanElzakker theory, I think this video goes pretty close to visually displaying what goes on. Go to http://www.innovativemedconcepts.com/ and in the bottom right, click on 'See the science'. (or try this link...
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    Dr KDM rifaximin

    Nicotine is also an antimicrobial too, so perhaps thats its mode of action. I have a lyme via iGenex diagnosis too but I'm thinking it could be more of a viral onset in my case, as EBV was the first thing to show up in testing. Diagnosis is a winding road to navigate, often filled with massive...
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    Dr KDM rifaximin

    Can I ask trickthefox, at the beginning of your illness, did you get struck down with an infection or was it a gradual onset?
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    Dr KDM rifaximin

    Glad to see a bit of a positive news! Please let us know how you get on with it trickthefox. Was surprised to see this paper, seems much more plausible after reading this today, http://www.ncbi.nlm.nih.gov/pubmed/26399744
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    Dr KDM rifaximin

    I tried CDS which is similar to dioxychlor and felt ok for about 5 days of taking it and then the reverse happened and back to the dreaded symptoms that come with treatments I've tried. I too get very quick reactions, 10 minutes is about right. I wonder if its something like eosinophilic...
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    Dr KDM rifaximin

    Ren, can I ask how you determined the H2S bacteria is an issue? Is that a stool test showing strep overgrowth?
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    Perrin/lymph drainage/massage: makes sense or not?

    Could it be microfilarial worms causing the issue? From this thread elsewhere: http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/265858-worms-may-be-a-big-part-of-lyme-suffering/limitstart/20 "most interestingly, Microfilarial worms. The latter are microscopic worms...