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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Adrenal Issues and treatment problems

    This is a good article referring to a lot of the problems people are experiencing with over stimulation from meds/supps for their adrenals plus the importance of treating the adrenals first before thyroid and other things. http://www.drlam.com/articles/ovarian_adrenal_thyroid.asp?page=1
  2. M

    What brand of pregnenolone is best?

    jeffrez that seems to be the most popular one. I like how you can cut it up. @ Thanks Evan! That's what I figured.
  3. M

    What brand of pregnenolone is best?

    Hi Evan, I'm not expecting miracles as nothing has helped me in 27 years but I'm at the point now where I just have to take something to support the adrenals whether I notice it or not. (HC and glandulars/adaptogens don't seem to help). I have so many other health issues going on that I think...
  4. M

    What brand of pregnenolone is best?

    Thanks guys for the info. That's great what you're using helped you. I think for me, the easiest thing would be to take the one by Nutricology since I'm doing this on my own. My doctor relies too much on blood tests that aren't accurate therefore I wouldn't be able to get a cream at a...
  5. M

    What brand of pregnenolone is best?

    Hi guys, I wanted to take pregnenolone to help with adrenal fatigue and to boost DHEA. What brand do you take/recommend? I read sublingual ones are best. I wanted to order some sublingual ones from Source Naturals but they are sold out everywhere. There's is a delay in manufacturing. Right...
  6. M

    Your opinion on Intramax

    Hi guys, I wanted to know your opinion on this supplement. I've wanted to buy it for a few years but never bothered cause the shipping was quite expensive. Now I've found it at my local health food store. https://store.druckerlabs.com/v/vspfiles/assets/images/pdfs/maxweblabel_20121130.pdf...
  7. M

    High sulfur and low lithium on hair tests

    Well I got my lithium. Now I know why I was able to order it from Canada. Even though it was a Canadian site based in Montreal, they shipped it from NY. I got it no problem but next time I'll order from iHerb for half the price!
  8. M

    High sulfur and low lithium on hair tests

    I asked my doctor for a referral a few months ago but she thought it would be better to see an Infectious Disease specialist for Lyme. So I had to go through that hoop first. She said the clinic would be over run with referrals and it would be faster to see the specialist and I felt like...
  9. M

    High sulfur and low lithium on hair tests

    Little Bluestem OK, thanks. I did wonder if it was elemental since it was only 5mg. I will be careful when I take it. I also wondered if it was the prescription kind that was toxic. Even though mine is low I don't feel it affects my mood much as I'm not depressed etc. But never know, I...
  10. M

    High sulfur and low lithium on hair tests

    Helen Thanks for your reply. I tried to buy lithium orotate from iHerb last year and they canceled it from my shopping cart as it's banned in Canada. Since it's not in stores I looked online just to double check and I found it at Biovea.ca but double the price. I'm not sure how there able...
  11. M

    Does methylation help to detox mold toxins?

    Hi Lotus. Thanks for finding that info for me. It's overwhelming sometimes the multiple things we have to deal with with this illness! I don't believe for me correcting the methylation cycle will make all my problems go away. I know I have to deal with other problems as well. I decided not...
  12. M

    Does methylation help to detox mold toxins?

    Hi guys, Just wondering if methylation helps with mold toxins? I'm aware of taking cholestyramine or cholestepure. Also foot detox pads and baths. I was taking cholestepure but it's rather expensive so bought another brand of phytosterols but don't know if it will be effective or not. I...
  13. M

    Methylation Made Easy videos

    caledonia Thank you very much for the vids. They were very simple to understand. I can piece it all together now! There was so much to learn and still so much more. Thanks for basics of methylation.
  14. M

    Combining Fred's and Rich's protocols

    Since Rich's protocol is geared towards people with CFS/FM I'm going with that one and also cause it seems like a more gentler approach. Rich was also involved in a successful study with Dr. Nathan using his protocol and he has also worked with Dr. Amy Yasko who's a pioneer in this type of...
  15. M

    Which protocol?

    Thanks for the testimonials Lotus!
  16. M

    High sulfur and low lithium on hair tests

    I'm wondering if it's related to a mutation but I don't know. I was hoping someone would have an answer. 23andme doesn't test that one and I can't afford to do Yasko's. I will read more about that mutation though. Thanks. I'm just learning about these mutations too. It's a lot to take in but...
  17. M

    High sulfur and low lithium on hair tests

    Could be they changed the formula. Actually on my bottle it's different. They only list Chloride 185mg, Magnesium 65mg, Sulfate 14mg, Sodium 2.4mg, Potassium 1mg 'plus all other minerals and trace minerals found in sea water.' I think the bottle is so small they can't fit everything on it. On...
  18. M

    High sulfur and low lithium on hair tests

    @ Lotus According to their website it's 1.5mg. http://www.traceminerals.com/products/liquid-tablet-minerals/concentrace-ionic-minerals
  19. M

    Which protocol?

    Thanks Lotus for the B12 chart. That's really handy. I have to read the rest of that link you provided. Freddd Thanks for your advice. I'm still deciding what to do and still have to read the links about your protocol that Ahmo provided. I was thinking of trying other B12's first before...
  20. M

    High sulfur and low lithium on hair tests

    Hi Lotus, I'm not sure if my high sulfur is in relation to the mercury issue or not. When I eat sulfur foods I have no reaction. They don't seem to bother me so I would think not. That's a great idea to add the drops to a capsule. I was doing that with MMS so don't know why I didn't...
  21. M

    High sulfur and low lithium on hair tests

    Hi guys, Is high sulfur on a hair test suggest a methylation problem? If so where in the pathway is the problem other than the CBS gene which I am -/- for? Does it have anything to do with BMST? Also my lithium is really low and in Canada I can't buy lithium off the shelf. I guess I could...
  22. M

    MTHFS defect (folinic acid intolerance) - request for genetic data

    Hi Nandixon. Here are my results: MTHFS, ST20-MTHFS 80136129 rs685487 A or G AG MTHFS, ST20-MTHFS 80136288 rs8033649 A or C CC MTHFS, ST20-MTHFS 80137560 rs8923 C or T TT MTHFS, ST20-MTHFS 80138571 rs2733103 C or T CC MTHFS, ST20-MTHFS 80138745 rs16971427 A or C AA MTHFS, ST20-MTHFS 80141997...
  23. M

    Which protocol?

    @Lotus Thanks for the info on soy. I was thinking there was soy in lecithin but I see now how it's extracted from the soy bean. Thanks also for the study info on Rich's protocol. It's encouraging to see the improvements. @ Ahmo Thanks for your suggestions. I was looking for Freddd's protocol...
  24. M

    Which protocol?

    For those who have hypothyroidism is it really bad to take 1 1200mg of soy lecithin a day? I'm just asking cause it's cheaper than egg or sunflower. I do avoid soy normally but wondered if taking this one capsule a day would be bad. I feel I should avoid it but have to watch my budget too...
  25. M

    Which protocol?

    In reading the rest of the comments in the revised August 25 2012 thread I have found this source as suggested by Lotus 97 http://www.iherb.com/Source-Naturals-MegaFolinic-800-mcg-120-Tablets/7735 I guess I'll have order from 2 places to get my supps. Does anyone know if Amy is still...
  26. M

    Which protocol?

    Hi guys, I was getting ready to buy supplements to try the methylation protocol. I was going to follow the one on the main page at http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/treating-chronic-fatigue-syndrome-mecfs-glutathione-and-the-methylation-cycle Then I came...
  27. M

    My genetic results, need suggestions please

    Hi Lotus, I figured ALA being one thiol was wrong cause it's the mainstay in Cutler's protocol and he's against single thiols like chlorella. I think it's good ALA crosses the BBB as if you have mercury there you want to get it out, you just have to do it safely. A lot of chelators don't cross...
  28. M

    My genetic results, need suggestions please

    @Lotus I know Mercury is very controversial. I just don't know what to do sometimes. Some people say this, some people say that. I've never heard ALA is a single thiol chelator. Very surprising cause Cutler is against single thiols like chlorella.. I think some people are more sensitive to...
  29. M

    My genetic results, need suggestions please

    @Lotus Thanks for your response. I was thinking of doing the Cutler protocol again. I really wasn't noticing any difference (I only did it a couple months though) and taking it around the clock was hard for me. So I was debating about Chlorella. I know Cutler doesn't feel it's a proper...
  30. M

    My genetic results, need suggestions please

    @Baccart Thanks again for your reply. I understand what you're saying. Problem is my health problems are a major undertaking as I have so many problems and my family doctor isn't familiar with half of it and a lot of things don't show up on regular testing. I know a good doctor for Lyme (an...