• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. R

    Decreased Oxygen Extraction during Cardiopulmonary exercise test in patients with CFS

    This thought just hit me. When my activity amount (physical and/or mental) goes above the limit for getting PENE, at I first feel very tired. If I continue pushing I get an energy boost and start feeling better. At the same time my thought processes are affected, like for example becoming overly...
  2. R

    UK - Regional News! UK Blood Donation Ban.

    On Youtube: http://www.youtube.com/watch?v=alZ2mugRUX8&feature=youtu.be&a
  3. R

    Comment by 'Ronnie' in 'Transmission, Remission and Outbreaks, Oh My!'

    Another superb post, George. I agree with so much of it. By trial and error I have done much towards points 3 (Revamp your entire personality) and 5 (Listen to your body and do what it says), and it has made my life better. What I believe might help further is "blanking my brain" more...
    • Ronnie
    • Blog entry comment
  4. R

    Is XMRV Causing finger print problems in CFS?

    Is it like the hands on the link below? http://www.lookgreat-loseweight-savemoney.com/livedo-reticularis.html My hands get like that when I'm standing with my arms down.