• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    Can the Flu and Other Viruses Cause Neurodegeneration?

    “Scientists may need to seriously reconsider the cast-aside hypothesis that pathogens can play a part in diseases such as Alzheimer’s and Parkinson’s”. Link to article: https://www.the-scientist.com/features/can-the-flu-and-other-viruses-cause-neurodegeneration--65498
  2. K

    ME/CFS in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms...

    It’s only referenced to provide example of a protocol that used immunostimulation as its basis - not at all advocating.
  3. K

    OMF-funded RBC Deformability Paper Published!

    Oxidative stress is also a hallmark of persistent infection: (see below ) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5309413/
  4. K

    ME/CFS in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms...

    Mel, the author alludes to the kind of immunotherapy they’re using for cancer patients where they re-engineer the t-cells to attack the tumors- this can be done for pathogens as well. I saw a recent publication about MS patients receiving an immunotherapy that activated cells to attack EBV...
  5. K

    ME/CFS in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms...

    ME/CFS in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms by Interfering With Host Metabolism, Gene Expression, and Immunity. (Proal et al) https://www.frontiersin.org/articles/10.3389/fped.2018.00373/full *Published today*
  6. K

    Cheney's Latest Newsletter

    yeah let's charge desperate people who can't work 10k for a visit and 4-6k for each follow up AND.... 600 dollars to call him for a few minutes: VERY insulting to say the least. The website that he updates every 5 months should be free, but people are greedy and that's just the way it goes. One...
  7. K

    From the 1st annual XMRV conference

    link is not working for me. i'm using safari 4.0 .... any suggestions?
  8. K

    My experience with ARVs

    not for nothing but lots of meds these days that you can buy from the internet are counterfeit, might wanna take that into consideration.
  9. K

    Blue cross of new york refuses CFS diagnosis and treatment.

    I am aware that Dr. Enlander's patients in NYC are being denied treatment coverage by Blue Cross, beginning a week or two ago.