1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. Hip replied to the thread General Survey re: Anti-virals.

    Have you every added to your regimen other supplements known to be useful for migraine, such as feverfew, riboflavin and magnesium? Ref:...

    Jul 22, 2014 at 2:44 PM
  2. justy liked RML's post in the group thread IV clinic costs..

    I mainly used airbnb, also looked at a few other sites, but they didn't always translate into english making it hard to understand. and...

    Jul 22, 2014 at 2:40 PM
  3. justy liked Sushi's post in the thread My trip to see Professor De Meirleir (long post).

    @justy Yes, he gives IVIG at Himmunitas. Sushi

    Jul 22, 2014 at 2:39 PM
  4. justy liked golden's post in the thread My trip to see Professor De Meirleir (long post).

    Perhaps you could try asking Dr. Myhill?

    Jul 22, 2014 at 2:39 PM
  5. Hip replied to the thread General Survey re: Anti-virals.

    There are many people on the forum that have more experience with herpes antivirals that I do; I have only really tried Nexavir, and have...

    Jul 22, 2014 at 2:34 PM
  6. melihtas liked Firestormm's post in the thread New research finds pathogenic connection between autoimmune disorders and cancer.

    New research finds pathogenic connection between autoimmune disorders and cancer Autoimmune disorders may share certain pathogenic...

    Jul 22, 2014 at 2:33 PM
  7. caledonia replied to the thread Requested suggestions on tests: gut, mithocondria, genes/methylation.

    I don't know if the Nutreval is any better, but Rich Van Konynenburg did several interpretations, which I compiled into the Nutreval...

    Jul 22, 2014 at 2:32 PM
  8. JPV replied to the thread 'I don't need a pub - I've got a brewery in my BELLY'.

    Care to share what steps you took to remedy the condition? Also, does it differ in any way from having a candida overgrowth or do you think...

    Jul 22, 2014 at 2:32 PM
  9. Firestormm liked Nielk's post in the thread My Rituximab experience with RA and ME.

    Thank you @Jonathan Edwards It is great to hear from "the oldest horses mouth in the business". It is comforting to hear that I can...

    Jul 22, 2014 at 2:27 PM
  10. Firestormm liked Jonathan Edwards's post in the thread My Rituximab experience with RA and ME.

    Dear Nielk, The important thing is that nobody should be expecting more at this stage. You were right to say that it can take three months...

    Jul 22, 2014 at 2:27 PM
  11. Antares in NYC replied to the thread Something's not right with my methylation protocol....

    I've been taking daily the exact recommendation in Rich's protocol: - Folapro: 1/4 of a tablet (5-methyl tetrahydrofolate) - Intrinsic...

    Jul 22, 2014 at 2:25 PM
  12. Firestormm liked Nielk's post in the thread My Rituximab experience with RA and ME.

    I am just checking in here again. It has been almost 5 weeks since my first infusion. I had my rheumatologist follow up appointment...

    Jul 22, 2014 at 2:25 PM
  13. catly liked Firestormm's post in the thread New research finds pathogenic connection between autoimmune disorders and cancer.

    New research finds pathogenic connection between autoimmune disorders and cancer Autoimmune disorders may share certain pathogenic...

    Jul 22, 2014 at 2:25 PM
  14. Sidereal replied to the thread NHS IAPT Medically Unexplained Symptoms/Functional Symptoms Postive Practice Guide.

    Horrifying.

    Jul 22, 2014 at 2:20 PM
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