Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. justy replied to the thread Low Dose Antigens / Immunotherapy (LDA/LDI).

    Still not convinced that LDI would be safe with MCAD's . Breakspear calls there allergy desensitisation programme LDI - low dose...

    Sep 1, 2015 at 9:05 AM
  2. JaimeS replied to the thread Unfolded Protein Response and A Possible Treatment for CFS.

    Wow indeed, Gondwanaland! That's certainly an intriguing hypothesis. My reading list... is... so.... loooong. -J

    Sep 1, 2015 at 9:03 AM
  3. JaimeS replied to the thread Unfolded Protein Response and A Possible Treatment for CFS.

    Whoa, did the conversation ever move on without me! Okay, first of all, I tried Rhodiola at a micro-dose. Initial reaction is as per...

    Sep 1, 2015 at 9:00 AM
  4. justy liked Lemnia's post in the thread Low Dose Antigens / Immunotherapy (LDA/LDI).

    Can anyone shed light on what they have experienced or know about LDA/LDI in regards to a new technique that seems to be working for so...

    Sep 1, 2015 at 8:56 AM
  5. justy liked Sasha's post in the thread Forgotten Plague documentary film is ready - arrange a screening!.

    I would very seriously encourage everybody who can to arrange a local screening - or even a not-local screening - and get help with boots...

    Sep 1, 2015 at 8:55 AM
  6. JaimeS liked Violeta's post in the thread Unfolded Protein Response and A Possible Treatment for CFS.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC514821/ ε£½The mammalian endoplasmic reticulum as a sensor for cellular stress Yanjun Ma and...

    Sep 1, 2015 at 8:43 AM
  7. JaimeS liked NilaJones's post in the thread Dr KDM, Dr Patricia Salvato and Dr Lucinda Bateman.

    It was actually an impressive diagnosis. In the US, most docs have never heard of EDS, and most people who do get diagnosed have to spend...

    Sep 1, 2015 at 8:40 AM
  8. JaimeS posted a comment on the blog entry High IL-8 as a marker for CFS?

    My IL-8 was 7 (range 0 -15 pg/mL); my IL-6 was 3 (range 0 - 5 pg/mL). All of my cytokines were...

    Sep 1, 2015 at 8:37 AM
  9. Anne liked Tom Kindlon's post in the thread AHRQ's responses to comments on draft AHRQ review on CFS.

    Peter White sometimes tries to claim that GET doesn't cause problems if done under an ME/CFS specialist. The data from 2015 ME Association...

    Courses given by ME-CFS specialists. symptoms after the course compared to how they were before.png Sep 1, 2015 at 8:33 AM
  10. JaimeS liked Dolphin's post in the thread The relationship between sleep problems and fatigue in chronic fatigue syndrome (CFS) (abstract).

    Yes, sort of. They're into blaming poor sleep behaviours as part of the reason we're still ill. This thread discusses the Pragmatic...

    Sep 1, 2015 at 8:29 AM
  11. JaimeS liked Scarecrow's post in the thread The relationship between sleep problems and fatigue in chronic fatigue syndrome (CFS) (abstract).

    There, I fixed their statement.

    Sep 1, 2015 at 8:29 AM
  12. JaimeS liked Bob's post in the thread Unhelpful cognitive and behavioural responses are associated with symptoms in adolescents with CFS.

    So if a person has increased problems engaging in activity at "time 1", because of their symptoms, then that person is more likely to have...

    Sep 1, 2015 at 8:28 AM
  13. JaimeS replied to the thread Unhelpful cognitive and behavioural responses are associated with symptoms in adolescents with CFS.

    That's an incredibly descriptive way of putting it. I like that. :) ( = "will steal it in the near future") ;) -J

    Sep 1, 2015 at 8:27 AM
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