Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. PDXhausted liked Eeyore's post in the thread Holy crap -- IgM deficiency.

    @SOC - I feel your pain. No one else but an ME patient could understand why you would go to a doctor, know what you have wrong with you...

    Sep 3, 2015 at 1:46 AM
  2. halcyon replied to the thread Those of you who tried Imunovir/Inosine - How fast did you see results or responses of any kind?.

    I took inosine for about 3 months. I'm not able to attribute any specific results to it due to taking it alongside other treatments, but...

    Sep 3, 2015 at 1:43 AM
  3. kungfudao liked sianrecovery's post in the thread Dr. Says Lyme disease does not exist.

    I recently rested positive for borrelia and babesia. If you want to read thousands of research references to how these tricky blighters...

    Sep 3, 2015 at 1:41 AM
  4. kungfudao liked Hip's post in the thread Dr. Says Lyme disease does not exist.

    Another finding that perhaps adds weight to the idea that chronic Lyme disease might be caused by an intracellular infection of Borrelia is...

    Sep 3, 2015 at 1:39 AM
  5. kungfudao liked Hip's post in the thread Dr. Says Lyme disease does not exist.

    For anyone with Lyme: assuming this intracellular form of Borrelia is the cause of many of the chronic Lyme disease symptoms, then it's...

    Sep 3, 2015 at 1:38 AM
  6. dannybex liked ppodhajski's post in the thread .:: Sustained-release Methylation Protocol (SRMP) ::..

    This talk of methylation and MAO is confusing to me. The only methyl that helps break down biogenic amines is SAMe and that helps the COMT...

    Sep 3, 2015 at 1:37 AM
  7. kungfudao liked RustyJ's post in the thread Dr. Says Lyme disease does not exist.

    The point of my post wasn't really about the efficacy of the ABs, but about the CDC's reluctance to publicly admit to persisters, when...

    Sep 3, 2015 at 1:35 AM
  8. dannybex liked ppodhajski's post in the thread Severe OCD.

    Hey Lume, I had OCD/Anxiety, I do not anymore. Magnesium Citrate for that COMT is a certainty. I need to see your MAO-B SNPs which are...

    Screen Shot 2015-04-21 at 6.22.13 PM.png Sep 3, 2015 at 1:23 AM
  9. panckage replied to the thread Is it possible to date with moderately severe CFS/ME? Have a relationship?.

    'Chat' dating is fun. People you are never going to meet but when you text each other it feels like real romance :D I would say do not...

    Sep 3, 2015 at 1:14 AM
  10. dannybex liked ppodhajski's post in the thread 23andme & Chronic insomnia and family history of psychiatric/CNS disorders.

    It is not separated that simply. The epigenome is sort of a liaison between our genes and the environment. They influence each other. Our...

    Sep 3, 2015 at 1:11 AM
  11. merylg liked susank's post in the thread Anyone know where to get IMIG online or in UK?.

    Tim - do you have a doctor that will prescribe the Gamma? Have you researched the various brands and their costs? In the US IMIG per...

    Sep 3, 2015 at 1:06 AM
  12. RustyJ liked jimells's post in the thread Dr Ian Gibson crowdfunding £15,000 for his book "Science, Politics and ME - Lifting the Lid on ME".

    I appreciate what Dr Gibson is attempting to do (if I understand his goals correctly), but I don't see how interviewing patients and...

    Sep 3, 2015 at 1:06 AM
  13. merylg liked mission impossible's post in the thread Anyone know where to get IMIG online or in UK?.

    Thanks for your reply daffodil. I think 5ml shots work out at half a gram. As to whether following up rituximab with immunoglobulin or it...

    Sep 3, 2015 at 1:06 AM
  14. dannybex liked ppodhajski's post in the thread Unfolded Protein Response and A Possible Treatment for CFS.

    NAD is produced in vivo from tryptophan and seems to be controled by factors that effect the IDO enzyme. IDO uses iron as a cofactor as...

    nadpath.png Sep 3, 2015 at 12:50 AM
  15. Hutan liked ahmo's post in the thread Australia - govt survey on chronic conditions.

    OK, then I'll give it a second go. I was so put off by things that had no meaning, I just shut it down after a few pages.

    Sep 3, 2015 at 12:50 AM
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