Recent Activity

Activity stream for all registered members at Phoenix Rising ME / CFS Forums.

  1. AndyPR liked Jenny TipsforME's post in the thread Thinking of donating a kidney to a stranger - good or bad idea as a CFS sufferer?.

    @Matthew Jones this seems like there would be problems on a number of levels. We're ruled out for giving blood but not organs, which is...

    Jan 20, 2017 at 4:10 PM
  2. AndyPR liked Old Bones's post in the thread Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!.

    I've been captivated by Jen's TED talk, and the lead-up to the "Unrest" film premiere. I realize this material is old (located on the...

    Canary comment.JPG Rebuttal.JPG Jan 20, 2017 at 4:09 PM
  3. Aroa liked Ben Howell's post in the thread OMF- Sharing what's happening-News January 2017.

    Hi Guys, I am not sure of Linda's schedule, but I will pass this on to her for you. Thanks for the support! B

    Jan 20, 2017 at 4:08 PM
  4. Jonathan Edwards replied to the thread Thinking of donating a kidney to a stranger - good or bad idea as a CFS sufferer?.

    For anyone who has a serious illness that is not understood, whatever the name, it seems to me sensible to avoid organ donation. ME is...

    Jan 20, 2017 at 4:06 PM
  5. Neunistiva liked Riley's post in the thread Canary in a Coal Mine becomes 'Unrest'.

    I think Unrest is a good title. I trust and respect Jen's judgement. She has created an ME documentary that is premiering at Sundance!...

    Jan 20, 2017 at 4:03 PM
  6. Izola liked Snowdrop's post in the thread Patient change attributions in self-management of severe chronic fatigue syndrome.

    Having been struck with this illness I am made aware of just how much people in general and the medical community in particular tend to...

    Jan 20, 2017 at 4:01 PM
  7. trishrhymes liked Sasha's post in the thread "Unrest" premiers at Sundance.

    Oh, great! I hope you enjoy the film. Looking forward to hearing your views!

    Jan 20, 2017 at 4:00 PM
  8. trishrhymes liked TiredSam's post in the thread MUS, PPS services and integration into NHS primary care - what's happening across the UK?.

    Science is done by taking a show of hands now is it?

    Jan 20, 2017 at 3:59 PM
  9. trishrhymes liked justy's post in the thread MUS, PPS services and integration into NHS primary care - what's happening across the UK?.

    Hhaha - yep, I could try, if people don't mind cold damp old houses. Im not actually up on this thread, ill have a read through. W do...

    Jan 20, 2017 at 3:59 PM
  10. trishrhymes liked Countrygirl's post in the thread MUS, PPS services and integration into NHS primary care - what's happening across the UK?.

    Look up page 59. http://www.nescn.nhs.uk/wp-content/uploads/2015/09/20150922-Presentation.pdf It shows a map of the UK where IAPT...

    Jan 20, 2017 at 3:59 PM
  11. trishrhymes liked Countrygirl's post in the thread MUS, PPS services and integration into NHS primary care - what's happening across the UK?.

    Here is the explanation of Chronic Fatigue (CFS??) as given to UK GPs by the PPS document!! :mad: Criminal and negligent!...

    Jan 20, 2017 at 3:59 PM
  12. trishrhymes liked Old Bones's post in the thread Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!.

    I've been captivated by Jen's TED talk, and the lead-up to the "Unrest" film premiere. I realize this material is old (located on the...

    Canary comment.JPG Rebuttal.JPG Jan 20, 2017 at 3:58 PM
  13. trishrhymes liked JaimeS's post in the thread Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!.

    This is just plain worth reading. I have to be proud of my community. <3 [IMG] We don't have a single person flipping out for no...

    Jan 20, 2017 at 3:58 PM
  14. atleje liked Kalliope's post in the thread Norwegian Research Council with 30 mill NOK (3,7 mill USD - 2.9 mill GPB) to ME-research.

    Not necessarily :) They published a thorough and harsh report in 2011 on health care (or rather the lack of it) for ME-patients in...

    Jan 20, 2017 at 3:57 PM
  15. trishrhymes liked Sasha's post in the thread Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!.

    Yes, Solve, on their FB page.

    Jan 20, 2017 at 3:56 PM
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