• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Phoenix Rising ME/CFS Forums

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News, Research, and Advocacy

ME/CFS Events

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Violeta
Zoom, Oct 4, 1:00 EDT, Research Roundtable

News and Research

ME/CFS and other health news and research
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Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Other Health News and Research
  4. Long COVID and Coronavirus
  5. Active Clinical Studies
  6. Phoenix Rising Articles
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Effect on Quality of Life of Therapeutic Plasmapheresis in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Elevated Ꞵ-Adrenergic and

Advocacy

Advocacy, fundraising and petitions
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  1. Action Alerts and Advocacy
    1. Advocacy Projects
    2. Millions Missing Campaign
  2. Petitions
  3. Fundraising
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D
OMF Global StudyME Registry - both healthy and ill participants needed - easy to sign up

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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K
Momentary switch of state

Symptoms and Treatments

Symptoms

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  1. General Symptoms
  2. Post-Exertional Malaise and Fatigue
  3. Pain and Soreness
  4. Neurological and Sensory Sensitivity
  5. Cognition, Brain fog, and Emotion
  6. Sleep
  7. Peripheral Neuropathy & SFN
  8. Immunology, Inflammation, Allergies
  9. Hypersensitivity, Intolerance, MCS
  10. Dysautonomia: Problems Standing, OI, POTS
  11. Dysautonomia: Cardiovascular, Respiratory, etc.
  12. Hormones, HPA axis, etc.
  13. Gastrointestinal: IBS, SIBO & Urinary
  14. Skeleton, Skin, Hair, Teeth, and Nails
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Wayne
Can Hard to Detect and Diagnose Focal Seizures Cause Symptoms of ME/CFS (?) -- ChatGPT Says Yes
  • Wayne

Treatment

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  1. General Treatment
  2. Antivirals, Antibiotics and Immune Modulators
    1. GcMAF
    2. Rituximab: News and Research
  3. Methylation, B12, Glutathione, etc.
  4. Hypersensitivity/MCS Treatment
  5. Gastrointestinal Treatment
  6. Alternative Therapies
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Dysfunkion
Lowering LPS in the context of leaky gut

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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Sub-forums:
  1. Information and Resources
  2. Lifestyle Management
  3. Finances, Work, Disability and Housing
  4. Disease Onset and Progression
  5. Spirituality and ME/CFS
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Rufous McKinney
Something to Ponder

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
  3. Genetic Testing and SNPs
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S
Has anyone achieved remission or recovery from treatment by any doctor?

Related Conditions

Comorbid Conditions, Differential Diagnoses, etc.

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Sub-forums:
  1. Fibromyalgia
  2. Lyme and Bacterial Infections
  3. Viral Infections
  4. Fungal Infection (Yeast, Candida, Mold)
  5. Mast Cell Activation (MCAS)
  6. Connective Tissue Disorders: Collagen, EDS, CCI
  7. Thyroid Dysfunction
  8. Adrenal Dysfunction
  9. Multiple Sclerosis
  10. Autoimmunity and Autoimmune Diseases
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ChookityPop
Aynone else with EDS? And have you found anything that help your symptoms?

In Memory of ...

In Memory of ...

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Fred Davis (@Freddd) 1948-2024

Miscellaneous

Resources, Projects, and Archives

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  1. Google Site Search
  2. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  3. Content Team Resources
  4. Institute of Medicine (IOM) Government Contract
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Thinktank
Ampligen Experiences

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