starlily88
Senior Member
- Messages
- 497
- Location
- Baltimore MD
Yah, the temporary remission is wild rejoicing...followed by a crash when you discover that it's not permanent. The important lesson is that our symptoms are not permanent degradation, like lost neurons, they are due to something keeping us in this abnormal state. The temporary remission shows us that it is possible to go back to normal. We're just waiting for the researchers to figure out how to do this, or for some ME/CFS victim to discover some food or whatever that does the trick. When I walk in the woods, I sometimes chew on (known to be non-toxic) berries, leaves, etc, just in case they contain the miracle cure. None have worked yet, but I keep hoping...
Now I know why you picked "wishful" for your name - indeed we all must carry this wishful thinking in order to maintain hope. Interesting what you said. Yes you are absolutely correct!!
This shows us that our symptoms are NOT permanent degradation, so exciting!
We are in limbo in abnormal state - Nos as hopeful as you that any researcher would even fall upon this - and there is no money - but will talk to my Cousin who does do research at Harvard/MIT about this - to see who we could contact.
I think with all our heads put together - so far the suggestions on here have been excellent! Thanks so much.