starlily88
Senior Member
- Messages
- 497
- Location
- Baltimore MD
Due to getting quite ill - put on prednisone for 12 days.
I started to feel differently on the 4th day.
I could deal with one dr who I have avoided for over 3 years. When he did his thing I did not get
angry, just shook his hand.
I have much less brain fog. I can concentrate better, can read books a bit.
My daily anxiety is gone. That is the best thing of all.
I have positive outlook on life. My outlook was doom everyday - no joy.
I am not experiencing mania - just the opposite. My mood is not up or down.
My mood feels just in the middle.
I am still fighting this thing he put me on steroid for.
I went to Shephard Pratt (Hopkins) to see shrink - he said I am not depressed, or mood disorder.
First time I feel "normal"since my disease turned worse.
I am positive about life, and doing things I used to do, like putting on music, dancing.
In last 2 days I have enjoyed talking to people In Trader Joe's after seeing the doctor.
I can read people better - I feel confident like I used to feel.
In the last few years, I noticed I got so irritable, very quick to anger, like I suddenly was different person.
I used to make people laugh, loved engaging with people, and smiled.
To experience such anger, irritibility, and anxiety is just awful - I had never been like that before.
I want to test my thyroid, adrenals, cortisol, pitutiary gland function.
Blood test show I have anemia again, and need iron infusion, so this makes me so much more fatigued.
I researched Prednisone.
It has been used in treatment resistant depression with fatigue.
Found CFS HealthWellnes forum where so many CFS patients have had same great result as me.
I do realize that the prednisone has lowered my inflammation.
But for me the mental affect is what I feel.
I do realize it suppresses my overactive immune system.
I am getting a break from my immune system attacking all my organs.
I know how Prednisone ruins one's body - that is not the answer.
Has anyone found anything to replace the "Prednisone" affect that I have gotten?
I never knew I could feel normal in my lifetime, and smile, and make plans.
I am dreading stopping this. Knowing that I can feel normal is awesome. It's not my before CFS person
but it is not this dreaded angry irritated can't even cook, can't do bills, can't move person.
I can't go back to feeling the way I have in the last few years - and no meds have even remotely helped me.
I don't think there is anything close to this prednisone affect. I realize this affect is only for short time.
Some people get manic, and can do a lot .
I don't feel like that. I just have a bit of motivation.
I didn't clean my whole place but could throw things away, clean kitchen. I could make chicken soup.
I could do these things the first 10 years I was sick - I could meet with friends from time to time.
Those days are way over. I feel like my brain is messed up physiologically with all my lesions, trigeminal neuralgia, thoracic nerve disease, etc.
I urinate 25 times day - with Prednisone that stopped.
I could not go without Linzess - now I don't need it, just use a bit of something else.
I don't feel like Superman - I just was so below the normal line that this has brought me a bit upwards.
This is a huge deal to me. I want to live like this.
I still have my CFS, I am not a new person - but any brain defects have been improved a lot.
I started to feel differently on the 4th day.
I could deal with one dr who I have avoided for over 3 years. When he did his thing I did not get
angry, just shook his hand.
I have much less brain fog. I can concentrate better, can read books a bit.
My daily anxiety is gone. That is the best thing of all.
I have positive outlook on life. My outlook was doom everyday - no joy.
I am not experiencing mania - just the opposite. My mood is not up or down.
My mood feels just in the middle.
I am still fighting this thing he put me on steroid for.
I went to Shephard Pratt (Hopkins) to see shrink - he said I am not depressed, or mood disorder.
First time I feel "normal"since my disease turned worse.
I am positive about life, and doing things I used to do, like putting on music, dancing.
In last 2 days I have enjoyed talking to people In Trader Joe's after seeing the doctor.
I can read people better - I feel confident like I used to feel.
In the last few years, I noticed I got so irritable, very quick to anger, like I suddenly was different person.
I used to make people laugh, loved engaging with people, and smiled.
To experience such anger, irritibility, and anxiety is just awful - I had never been like that before.
I want to test my thyroid, adrenals, cortisol, pitutiary gland function.
Blood test show I have anemia again, and need iron infusion, so this makes me so much more fatigued.
I researched Prednisone.
It has been used in treatment resistant depression with fatigue.
Found CFS HealthWellnes forum where so many CFS patients have had same great result as me.
I do realize that the prednisone has lowered my inflammation.
But for me the mental affect is what I feel.
I do realize it suppresses my overactive immune system.
I am getting a break from my immune system attacking all my organs.
I know how Prednisone ruins one's body - that is not the answer.
Has anyone found anything to replace the "Prednisone" affect that I have gotten?
I never knew I could feel normal in my lifetime, and smile, and make plans.
I am dreading stopping this. Knowing that I can feel normal is awesome. It's not my before CFS person
but it is not this dreaded angry irritated can't even cook, can't do bills, can't move person.
I can't go back to feeling the way I have in the last few years - and no meds have even remotely helped me.
I don't think there is anything close to this prednisone affect. I realize this affect is only for short time.
Some people get manic, and can do a lot .
I don't feel like that. I just have a bit of motivation.
I didn't clean my whole place but could throw things away, clean kitchen. I could make chicken soup.
I could do these things the first 10 years I was sick - I could meet with friends from time to time.
Those days are way over. I feel like my brain is messed up physiologically with all my lesions, trigeminal neuralgia, thoracic nerve disease, etc.
I urinate 25 times day - with Prednisone that stopped.
I could not go without Linzess - now I don't need it, just use a bit of something else.
I don't feel like Superman - I just was so below the normal line that this has brought me a bit upwards.
This is a huge deal to me. I want to live like this.
I still have my CFS, I am not a new person - but any brain defects have been improved a lot.