Link to last night's panel discussion at Berkeley with Dr David Tuller and Prof Ron Davis

[alex3619]

If I recall correctly, didn't Dr Cheney tell us some years ago that his nurse developed ME after getting a needle stick injury following the treatment of an ME patient?

Such claims go back to the 90s or even 80s. This is not the first time. What is interesting is this happened during development of an animal model.

 

[Gemini]

Great panel... it really is great to see the panel and the compassion and dedication.

Appreciate the panel members and Ron Davis' participation and research update.

His opening comments [5:20 - 9:20 on video] are worth a listen; he notes the collection of vast amounts of data since his appearance in the film UNREST.

Data analysis is revealing patterns of heterogeneity in how ME/CFS is "expressed." He's still pretty optimistic they can trace it back to a single cause, however, hence a focus on cause not heterogeneity.

Hearing this I thought it might tie in with Step 1 of Dr. Naviaux's 3-Step Treatment Strategy presented at the Community Symposium:

1. Remove the CDR trigger if still present
2. Refill the metabolic tank
3. Use antipurinergic therapy

@Cinders66 I agree with you about the compassion and dedication. A stellar International Working Group of researchers, sharing data, involving the patient community, working collaboratively, open to input....so much to be grateful for!

Edit: Link at 17:43 on Naviaux's presentation: