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Project #undauerME #art2cureME #millionsmissing

Grigor

Senior Member
Messages
462
Location
Amsterdam
Hi everyone,

I'm very proud & excited to announce a little/big project I've started. I've asked over 60 of my professional artists friends to help raise awareness for Myalgic Encephalomyelitis. Some of them are (former) (ballet) dancers, choreographers, (opera) singers, (concert) pianists, architects, cartoonists, writers, photographers, filmmakers, DJ’s etc.
From the 1st of May, which is the start of #MEawarenessmonth, they will be posting something they've created online. I'm really overwhelmed by the positive response I've gotten. A real humbling experience. Plus I don't think this has ever happened in the history of M.E. Obviously I have no idea how this will turn out to be but I do think we will see some very beautiful and touching work.
I'm now inviting everyone else to join in from the 1st of May. The more the merrier. Please read my blog for more information. On mobile view the language switcher is totally at the bottom of the page.
Will you join and help?? Personally I'm too ill to create something new so I'll be posting something old :) Should do the trick. Hope to see you on the 1st of May.

#undauerME#art2cureME#millionsmissing

Start reading, start liking, start sharing!!

Groetjes,

Anil ❤️

English: http://anilvanderzee.com/undauer-eng/

Nederlands: http://anilvanderzee.com/undauer-nl/

Deutsch: http://anilvanderzee.com/undauer-de/

Français: http://anilvanderzee.com/undauer-fr/

Español: http://anilvanderzee.com/undauer-es/
 
Messages
2,125
Excellent piece; says it all :thumbsup: Have sent link to a number of people and encourage others to do the same.

Comment from Janet Dafoe:
Janet Dafoe2 days ago
This is just so good, Anil! I read it to Ron. This is what he said right after his exclamations of upset over your story and the whole PEM/GET ridiculousness and tragedy. "These "doctors" that continue to believe in CBT/GET for ME/CFS call themselves scientists. However, the job of a scientist is to make observations, propose a hypothesis, and then attempt to disprove it. In the case of GET, it’s rather easy to disprove it. Failure to look at the data and continuing to hang on the their original hypothesis disqualifies them from being called scientists."
 

Grigor

Senior Member
Messages
462
Location
Amsterdam
Great article. A little bit long for my concentration levels but that will be an individual thing so it's not a criticism - as David Tuller has shown, sometimes a lot of words are needed. I've also commented as well. :)
Hey Andy,

I totally agree. It became way too long. But I wasn't sure where to shorten it. I saw your comment. Thanks for that. Hope the BPSers will get to read it. I will respond to it in a bit. :thumbsup:
 

Grigor

Senior Member
Messages
462
Location
Amsterdam
As long as I have been suffering from my illness I’ve read and have also had some people tell me that the cause and course of my disease rests in some way in my own hands. I have always found that remark quite hurtful but most of all, unfounded. As there is still a lot which remains unclear about Myalgic Encephalomyelitis (ME) which could be the reason why people might come to such a conclusion, whilst there are those who go even as far as claiming the same thing about a horrible disease like cancer. But is that really true? Are we patients really in control? What does the literature say?

http://anilvanderzee.com/can-positivity-cure-any-disease/