What are some natural supplements for POTS?

[mission impossible]

nimodipine works the best for me for POTS.

I've tried midodrine, butchers's broom, propranolol with caffeine combo, they all work a tiny bit but no where near as well as the nimodipine, for me anyway.

Note you need to take really small doses with ME even smaller if severe. I only take 1/8 of 30mg tablet maintenance does which isn't enough to help with pots but then I take about 1/4 tablet for days when I need to be 'active' or upright most of day, and this is enough to do the trick all day, and increase energy levels and less PEM.
But I save this larger dose for those days I need to be functioning better ie doctor appt or something. I don't know what would happen if I took a larger dose everyday, it would make me over do it, so I haven't done tried that yet....

If you take too much nimodipine you get a headache, so you increase it until you reach that then reduce a little. Most people need more than I take, most severely affected need less.

For more info on how to take nimodipine google:
Nimodipine Use in ME/CFS a Comrehensive Guide by by Susan parker 25%ME group
and you can download the pdf.

Note most ME doctors prescribe too high a dose regime, Dr Mason Brown's guidelines (in the above pdf)were the only ones I could follow

Good luck if you try it.

 

[Peyt]

nimodipine works the best for me for POTS.

I've tried midodrine, butchers's broom, propranolol with caffeine combo, they all work a tiny bit but no where near as well as the nimodipine, for me anyway.

Note you need to take really small doses with ME even smaller if severe. I only take 1/8 of 30mg tablet maintenance does which isn't enough to help with pots but then I take about 1/4 tablet for days when I need to be 'active' or upright most of day, and this is enough to do the trick all day, and increase energy levels and less PEM.
But I save this larger dose for those days I need to be functioning better ie doctor appt or something. I don't know what would happen if I took a larger dose everyday, it would make me over do it, so I haven't done tried that yet....

If you take too much nimodipine you get a headache, so you increase it until you reach that then reduce a little. Most people need more than I take, most severely affected need less.

For more info on how to take nimodipine google:
Nimodipine Use in ME/CFS a Comrehensive Guide by by Susan parker 25%ME group
and you can download the pdf.

Note most ME doctors prescribe too high a dose regime, Dr Mason Brown's guidelines (in the above pdf)were the only ones I could follow

Good luck if you try it.

One question, before starting Nimodipine, did you ever have nose bleeds or blood cloths in your mucus?

 

[mission impossible]

No I've never had those symptoms before or during nimodipine. but if you do decide to try it, start low and go slow, as soon as you get a headache it's too high. alot of people with ME need a smaller dose than the usual general public dose but then again some with ME take the full dose no problem.

That guide I said toi google and download will tell you more than I can tell you though