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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Contribute Evidence for NICE consultation
- Thread starter Jenny TipsforME
- Start date
Jenny TipsforME
Senior Member
- Messages
- 1,184
- Location
- Bristol
I don't know. This needs to be raised as a disability access requirement.
Jenny TipsforME
Senior Member
- Messages
- 1,184
- Location
- Bristol
Does anyone know if Sweden recommends GET at all?
Their website looks good https://www.1177.se/Uppsala-lan/Fakta-och-rad/Sjukdomar/MECFS/#section-5
Their website looks good https://www.1177.se/Uppsala-lan/Fakta-och-rad/Sjukdomar/MECFS/#section-5
Jenny TipsforME
Senior Member
- Messages
- 1,184
- Location
- Bristol
Any citations for 2 day exercise tests with deconditioned controls?
mango
Senior Member
- Messages
- 905
There are currently no official national guidelines for treatment of ME/CFS in Sweden. However, a lot of doctors do recommend CBT/GET
Jenny TipsforME
Senior Member
- Messages
- 1,184
- Location
- Bristol
Thank you all for your help, it did make a difference.
This will give you the gist of our response
See http://www.meaction.net/2017/07/23/meaction-uk-response-to-nice-2017/ to read in full.
This will give you the gist of our response
See http://www.meaction.net/2017/07/23/meaction-uk-response-to-nice-2017/ to read in full.