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Here's another video, summarizing and simplifying a topic in physiology and making it relevant to ME/CFS. I hope it clarifies some terms and the relationships among some processes.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Sadly, I know the feeling. My video certainly isn't an attempt to comprehensively explain ME/CFS. My understanding is that the feeling of exhaustion when a person is ill results from 1) resources being diverted from ordinary activities to fighting the illness and 2) signals from the nervous system that create feelings of pain and exhaustion. In any case, for me the feeling of exhaustion when sick is different from the feeling of energy-use when exercising.The only thing I'd like to add is that in addition to a CFS person not being able to produce enough energy for their basic functioning making them feel tired, at least from my experience, is that simply feeling unwell in whatever way that might be, even say being in pain, also consumes alot of energy.
I'm going to look for one of those shirts.I used to have a physiology teacher who from time to time would wear a t-shirt that read, "Though I may look like I'm doing nothing, on a cellular level, I am actually quite busy".
Awesome! That's great to hear.Thanks for these 2 videos. I found them clear and the fire analogy works really well. I've posted links on another forum where people struggle even more than I do with the science but really need to hear this information that biology is the key.