Alvin2: you are right about us needing some real progress in biomedical research. I'm not able to do that, other than help with money. I am able to produce something that refutes the psychosomatic assertions, and that may, just may, start to influence decent state funding for proper research. Although we patients have funded a lot of research, large-scale state-funded research needs to develop any leads. At the moment, virtually all the tiny amount of state funding goes into psychosocial stuff. We need to change that atmosphere.
You could say that we need to influence the politicians, but they only turn to official sources of information. So we do need to create a reasonably solid block of accredited information that people can refer to.
It can be done. Things are changing in the US: it's just that here in the UK the old boy network is hard to break.