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David Tuller needs our help

BurnA

Senior Member
Messages
2,087
he should get it, I see this has only been going for 2 weeks of the fundraising month and already over 2/3 the way to the amount needed.
I am not so confident. Typically donations will taper off and it seems already that the rate of donations has dropped.

At this stage I think the best we can do is to Help spread the word. So if anyone knows someone in a group / charity / organisation who might like to know about this I think it would be the time to tell them.
 

Starlight

Senior Member
Messages
152
I'm sure this is stressful for him,the money needs to be fully raised so that he will have some bit of security. We couldn't even dream of paying him for all he has done. Bringing down PACE is crucial ,it has destroyed lives and families.I of en think how different it would have been if it hadn't existed..it's the only research that many doctors and family members are aware of and it has caused destruction.When the truth is obliterated idestruction is always the result.i think most of us have experienced the destruction up close and anyone who hasn't is very fortunate indeed.. If everyone looking in here and on every other ME site contributes even a little this money will come in.the importance of this cannot be overstated. If David Tuller is successful ( and I can't recall anyone else willing to take on this task) it will bring about a real change for us,for science and for those coming after us.it is a real David and Goliath battle and we need to be behind him. I am infuriated at what this illness has robbed from someone very dear to me,from myself from all of us and especially from all the young people..to my mind PACE has played a big part in this and as we know there are those who are working hard to keep this dangerous status quo. We need to be on the side of David in this one.
 

Binkie4

Senior Member
Messages
644
Just had a thought. Has anyone thought of contacting Dr Enlander in NYC. I seem to remember a grateful patient giving him $100000 a while ago to set up some research.

I think he signed the recent letter to Psychological Med so he might be interested in David Tuller"s work.

I don't have a reference about the grateful patient. I think I saw it in an interview clip or someone might remember seeing it in print. My memory is awful. I used to be so good at remembering.......
 

Countrygirl

Senior Member
Messages
5,475
Location
UK
http://www.virology.ws/2017/06/14/trial-by-error-continued-my-letter-to-the-university-of-bristol/

(Part of the letter is shown below. Click on the link for the entire document.)
My Letter to the University of Bristol
14 JUNE 2017
By David Tuller, DrPH

This morning I e-mailed the following letter to Sue Paterson, the University of Bristol’s Director of Legal Services and Deputy University Secretary, to protest Professor Esther Crawley’s accusation that I libeled her in blogging about her work. I cc’d the office of the university’s vice-chancellor, Professor Hugh Brady.

**********

Dear Ms. Paterson:

I have recently learned that Professor Esther Crawley of the University of Bristol’s Centre for Child and Adolescent Health, in her inaugural lecture on February 24th of this year, accused me of libel. During her talk, she showed a slide with the phrase “libellous blogs,” accompanied by a screen shot of one of my blog posts on Virology Blog. While that slide was on the screen, she also mentioned “libellous blogs,” obviously referring to the Virology Blog post, among others.

This libel accusation is false. Given that Professor Crawley made this unsupported charge in such a high-profile academic setting, I felt that it was important to bring the matter to your attention and express my surprise and displeasure. (I have also cc’d the office of the university’s vice-chancellor, Professor Hugh Brady.)

Virology Blog is a well-regarded science site hosted by Professor Vincent Racaniello, a prominent virologist at Columbia University. (I have also cc’d Professor Racaniello.) For the last year and a half, I have been writing an investigative series for Virology Blog called “Trial by Error,” about the many flaws of the PACE trial and related research, including Professor Crawley’s work. In accusing me of libel, she was also accusing my colleague, Professor Racaniello, of publishing libellous material. Professor Crawley used this slide again during a talk in April to the British Renal Society. I have written several subsequent posts about the libel accusation itself.

It is certainly true that the post highlighted in the slide, titled “The New FITNET Trial for Kids,” is harsh on Professor Crawley’s recent work. It is my opinion, as a public health expert from the University of California, Berkeley, that her research and the FITNET-NHS protocol are highly problematic in their presentation of the illness variously called chronic fatigue syndrome, myalgic encephalomyelitis, ME/CFS, or CFS/ME. In the post in question, I outlined these issues and carefully documented the facts on which I based my arguments. My concerns are shared by many leading scientists and experts in study design and research methodology.

In my post, I explained how Professor Crawley has misstated the NICE guidelines in both her research and her FITNET-NHS proposal, in ways that appear to eliminate post-exertional malaise as a required symptom. I also noted that she has conflated the symptom of “chronic fatigue,” a hallmark of many illnesses, with the specific disease entity she prefers to call “chronic fatigue syndrome.” As many have previously noted, this conflation generates samples that are far too heterogeneous to yield reliable and valid conclusions about prevalence, causes and treatments.
 
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