Donations to ME Research

[mango]

I made a donation to OMF today. 10 years ago this week was my last day of work....

 

[Ben H]

I made a donation to OMF today. 10 years ago this week was my last day of work....

Hey @mango

These 'anniversaries' are really tough. 5 years for me this month.

But you're doing an amazing thing funding this research and it is going to be fruitful soon.




B

 

[Jo Best]

Funding update as promised Invest in ME Research on Gut Microbiota in ME - https://www.justgiving.com/fundraising/gutmicrobiome

Project info now on new website for Invest in ME Research Centre of Excellence for ME.
News page here - http://future.cofeforme.eu/ce-news.shtml

 

[Jo Best]

Funding update for Invest in ME Research on B-cells/Rituximab -
http://www.ukrituximabtrial.org/IIMEUKRT Donate.htm

 

[BurnA]

Funding update for Invest in ME Research on B-cells/Rituximab -
http://www.ukrituximabtrial.org/IIMEUKRT Donate.htm

View attachment 17752

Good news.

I didn't see a date on that article - it says

In order to continue B-cell study research in ME, and as part of the overall research portfolio that Invest in ME has with UCL, we are committing ourselves to fund a new PhD studentship at UCL beginning next year.

Does this mean a new PhD starting in 2017?

If so this is great. I think this is one key area for research funding - the more PhDs we can fund the better. It potentially means a new lifelong researcher on board.

Anyone know how much it costs to fund a PhD ?

 

[Jo Best]

Good news.

I didn't see a date on that article - it says



Does this mean a new PhD starting in 2017?

If so this is great. I think this is one key area for research funding - the more PhDs we can fund the better. It potentially means a new lifelong researcher on board.

Anyone know how much it costs to fund a PhD ?

Edited to add that I checked and that reference to a new PhD was made in 2014.
They have been funding two PhDs - Daniel Vipond and Fane Mensah.

They also announced in August 2016 -

"IiME have agreed to fund an additional student at UCL to assist with the project "B cell function in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Investigations of metabolic function during B cell maturation and differentiation". The aim is to investigate potential differences in B cell maturation, differentiation and metabolism between patients with ME/CFS and healthy controls. The charity will underpin the extra work with a grant of £9000 to cover the student who will work until early 2017 assisting existing PhD student Fane Mensah and Dr Jo Cambridge. The team hope to identify whether potential differences are due to alterations in signalling or metabolism in B cells from ME/CFS patients and the additional student resource will hopefully accelerate Fane's project." -
http://www.ukrituximabtrial.org/Rituximab news-Aug16 01.htm

Their 5 year Plan is on this page - http://future.cofeforme.eu/ce-thecentreforme.shtml
It includes PhDs, medical students and postdocs.

 

[AndyPR]

Not a donation to research but still a little bit of fundraising - I and my wife recently used the Phoenix Rising Amazon commission link, details of what that is here http://phoenixrising.me/about/phoenix-rising-store, you can also directly donate here http://forums.phoenixrising.me/index.php?donate/

 

[Ben H]

Hi guys,

Wanted to post this here as its an amzing opportunity for fundraisers-hope this is okay-please check the following thread!

http://forums.phoenixrising.me/inde...donated-omf-will-receive-3.47431/#post-775832


Amazing eh?!

Thanks as always,


B

 

[Jo Best]

Forgot to post this update to the Invest in ME Research B-cell/rituximab fund (incidentally the PhD student working on the B-cell research, Fane Mensah, is at IACFS and received a travel grant from Solve ME/CFS). Hopefully, this link to the Invest in ME Research Centre of Excellence news page works (otherwise click on 'news' tab). http://www.cofeforme.eu/

 

[AndyPR]

Update from Solve ME/CFS Initiative on donations to them


https://www.facebook.com/SolveMECFSInitiative/videos/10154010662757108/ to view the video or go to http://solvecfs.org/DONATE to donate.

 

[AndyPR]

From the Let's Do It For ME website;

A very generous friend of our very own super supporter and severe ME sufferer, Geoff Allen, has kindly offered to match the first £1500.00 donated to the following justgiving page .

Geoff himself is a severe sufferer yet is generous with his own donations and limited energy in support of Invest in ME Research (and the 25% group) as many of you who have carried out events in support of IiME will already know.

So let’s take full advantage of this generous offer

You can also donate via text
Text GMMO78 (£1 to £10) to 70070
E.g. GMMO78 £5

Don’t forget the space after 78 and to add gift aid if you are a U.K. tax payer.

Thanks for taking the time to visit our JustGiving page.

https://www.justgiving.com/fundraising/Geoff-MMO

http://ldifme.org/2016/11/05/matching-movember-offer/

So if you want to help fund biomedical research in the UK (Invest in ME) here is a great chance to increase the impact your donation will make.

 

[Jo Best]

Invest in ME Research Gut Microbiota funding update - http://future.cofeforme.eu/ce-news-1611-01.shtml

 

[Jo Best]

Just a reminder of the Matching Movember offer by a generous friend of severe ME sufferer Geoff Allen - £404 donated so far (max £1500) - https://www.justgiving.com/fundraising/Geoff-MMO

 

[Jo Best]

Just created my first thread with this update on the Invest in ME Research UK Rituximab Trial -
http://forums.phoenixrising.me/index.php?threads/uk-rituximab-research-update.47932/
The direct link to the update -
http://future.cofeforme.eu/IIME-Newslet-1611-03.shtml

 

[Jo Best]

From the Let's Do It For ME website;
http://ldifme.org/2016/11/05/matching-movember-offer/

The £1500 matching target was reached and Geoff’s amazing friend also matched –
£186 in cards sales by Jane Hurst
£150 in card sales and donation tin by Amy Bakewell

 

[Jo Best]

December updates on the totals raised so far for the Invest in ME Research Centre of Excellence for ME translational biomedical research strategy..

IiMER Rituximab - http://www.investinme.org/ce-news-1612-01.shtml

IiMER Gut Microbiome - http://future.cofeforme.eu/ce-news-1612-02.shtml

 

[AndyPR]

Feeling smug that I'm doing my bit, no matter how small that might actually be.

 

[Ben H]

Feeling smug that I'm doing my bit, no matter how small that might actually be.View attachment 19241

Thanks so much @AndyPR

And everyone else that is helping and donating to OMF. Each donation goes so far to helping us crack this. Unlimited permissions to feel smug!!

We are having a webinar soon with Prof Davis himself in February, and he will be able to update you all on the amazing progress that has been made.


B

 

[AndyPR]

And today I made a donation to the Centre for Infection and Immunity in support of Lipkin and Hornig's Monster study, in honour of a friend's birthday, who also does a lot of advocacy work unheralded behind the scenes. I'm not sure there is much left in any of my piggy banks now though - I'm sure my lottery numbers will come up tonight though...

http://www.bit.ly/DonateToDrLipkin

 

[Solstice]

And today I made a donation to the Centre for Infection and Immunity in support of Lipkin and Hornig's Monster study, in honour of a friend's birthday, who also does a lot of advocacy work unheralded behind the scenes. I'm not sure there is much left in any of my piggy banks now though - I'm sure my lottery numbers will come up tonight though...

http://www.bit.ly/DonateToDrLipkin

Those lottery's. I almost won 90 mil, part of that would've payed for so much research. But alas, i was left with a tenner.