Kati
Patient in training
- Messages
- 5,497
Thanks to @ScottTriGuy and a group of patients and supporters, Dr Phillpott, our health minister has agreed to meet with Scott after some persuasion.
Here is an article, please share widely on social media. http://m.yorkregion.com/news-story/...lth-minister-jane-philpott-s-event-in-markham
Television network CTV was on scene and it sounds like there will be a newsclip later tonight
Stay tune for more. It is time Canada does its share of the work and starts caring for all diseases, not the most popular ones.
Here is how it happened:
ME patients, family and friends met at Tim Horton's to pass out t-shirts and go over our plan. CTV News was already on site and interviewed Jeff and Scott prior to the ‘Meet and Greet’. They put microphones on both so they could hear their conversation with Minister Philpott.
After waiting in a receiving line and greeting Minister Philpott, we asked her to:
- commit to a public announcement in the very near future that ME is biological and not psychological
- ensure that physicians start using the CCC
- commit to developing a National Strategy
We explained that these small gestures would have a profound effect on the lives of those with ME. Her assistant Julie tried to move her on to the next person.
Minister Philpott said she receives a lot of requests for National Strategies every week. She would not commit to a public announcement that ME is biological.
After speaking with Minister Philpott in the receiving line, the group decided that her response was not nearly good enough and so these brave souls all gathered behind Minister Philpott to start a protest.
As you can see from the photo, Scott stood on a chair and began speaking very loudly!
After a few minutes, Minister Philpott agreed to meet after the event was over to talk further. While waiting patiently and respectfully, the group made good use of the time by chatting with people, passing out flyers and increasing awareness of ME.
At the end of the day, Minister Philpott agreed to a meeting in Ottawa with Scott and her assistant will contact him to set up this meeting.
Yay!!!
So to Minister Jane Philpott we say,
"Thank you Minister Philpott for meeting with ME patients, listening to our concerns, and inviting us to meet with you in Ottawa!"
Narrative by @ScottTriGuy and Jeffery Smith
Here is an article, please share widely on social media. http://m.yorkregion.com/news-story/...lth-minister-jane-philpott-s-event-in-markham
Television network CTV was on scene and it sounds like there will be a newsclip later tonight
Stay tune for more. It is time Canada does its share of the work and starts caring for all diseases, not the most popular ones.
Here is how it happened:
ME patients, family and friends met at Tim Horton's to pass out t-shirts and go over our plan. CTV News was already on site and interviewed Jeff and Scott prior to the ‘Meet and Greet’. They put microphones on both so they could hear their conversation with Minister Philpott.
After waiting in a receiving line and greeting Minister Philpott, we asked her to:
- commit to a public announcement in the very near future that ME is biological and not psychological
- ensure that physicians start using the CCC
- commit to developing a National Strategy
We explained that these small gestures would have a profound effect on the lives of those with ME. Her assistant Julie tried to move her on to the next person.
Minister Philpott said she receives a lot of requests for National Strategies every week. She would not commit to a public announcement that ME is biological.
After speaking with Minister Philpott in the receiving line, the group decided that her response was not nearly good enough and so these brave souls all gathered behind Minister Philpott to start a protest.
As you can see from the photo, Scott stood on a chair and began speaking very loudly!
After a few minutes, Minister Philpott agreed to meet after the event was over to talk further. While waiting patiently and respectfully, the group made good use of the time by chatting with people, passing out flyers and increasing awareness of ME.
At the end of the day, Minister Philpott agreed to a meeting in Ottawa with Scott and her assistant will contact him to set up this meeting.
Yay!!!
So to Minister Jane Philpott we say,
"Thank you Minister Philpott for meeting with ME patients, listening to our concerns, and inviting us to meet with you in Ottawa!"
Narrative by @ScottTriGuy and Jeffery Smith
Last edited: