• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Has anyone seen Dr. Kent Holtorf?

Messages
2
Don 't know Kent Holtorf. They have a clinic in Atlanta. Has anyone seen Dr. Bullington? All these CFS and Fibro doctors charge so much and you have to wonder if any of them can actually improve our condition.
Thanks for your input
'
 

Gingergrrl

Senior Member
Messages
16,171
Since I am the one who started this thread which got revived, I should clarify that I never saw Dr. Holtorf and have no opinion or experience of him. At that time I was searching for a CFS specialist and was inquiring about lots of different docs.

I am currently, however, doing nebulized glutathione (which became an active part of this thread's discussion) which has thus far been one of the most helpful treatments that I have tried yet. It is (in my case) to detox mold and other toxins and I have done it for 28 days thus far. My mold doc does not endorse IV glutathione and thinks it overwhelms the system too fast and then leaves the body fast whereas nebulized is a slower process and can also help to heal the lung tissue. Just wanted to add my two cents about this and have no idea if it applies to anyone else.
 

me/cfs 27931

Guest
Messages
1,294
This article just popped up in a search of today's news. I might show it to a doctor who recently prescribed 30-45 minutes of brisk exercise a day for me.
Having a Hard Time Tolerating Exercise?
by Holtorf Medical Group

Many people with illnesses such as Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), and POTS report similar experiences and frustrations with exercise. They are told that exercise and staying active will help their condition and yet attempts at aerobic exercise often lead to breathlessness, dizziness, and post-exertional fatigue. Many times, their doctors blame these symptoms on deconditioning, or simply being “out of shape.” However, these patients - especially those who were active or athletic before becoming chronically ill - can attest to the fact that their symptoms go beyond the adjustment period normally experienced when starting an exercise program. Research validates that you’re not simply “out of shape”.

New research findings have discovered distinct physiological reasons for this phenomenon known as “exercise intolerance,” validating the experiences of these chronically ill patients.


https://www.holtorfmed.com/having-a-hard-time-tolerating-exercise/
 

perrier

Senior Member
Messages
1,254
Since I am the one who started this thread which got revived, I should clarify that I never saw Dr. Holtorf and have no opinion or experience of him. At that time I was searching for a CFS specialist and was inquiring about lots of different docs.

I am currently, however, doing nebulized glutathione (which became an active part of this thread's discussion) which has thus far been one of the most helpful treatments that I have tried yet. It is (in my case) to detox mold and other toxins and I have done it for 28 days thus far. My mold doc does not endorse IV glutathione and thinks it overwhelms the system too fast and then leaves the body fast whereas nebulized is a slower process and can also help to heal the lung tissue. Just wanted to add my two cents about this and have no idea if it applies to anyone else.
What sort of glutathione do you use?
Where do you obtain it?
 

Gingergrrl

Senior Member
Messages
16,171
What sort of glutathione do you use?
Where do you obtain it?

I do not use it anymore and stopped back around May when we had to temporarily move to a hotel b/c of a flood in our apt. It was the nebulized form and I got it from Wellness Pharmacy in Alabama (shipped to me, I don't live there). They are phenomenal and can explain all of the details and you can find their website on-line, too.
 

Gingergrrl

Senior Member
Messages
16,171
Wasn't it helping anymore? Did it help something?

It was always meant to be a temporary treatment as part of my mold detox. It did help but I abruptly stopped it when we had to move to hotel b/c of flood and initially did not have a way to clean the nebulizer or store the vials of glutathione in fridge. It was also very expensive. Am now living in a mold-free apt with very clean air and multiple hepa filters and I think I took the glutathione as far as it could go (along with trying different mold binders). My focus now is on lowering auto-antibodies. But I did not stop b/c of anything negative with the glutathione and would do it again as it did help especially when I was still being exposed to mold while living at family's house prior to moving. Hope that makes more sense.
 

Gingergrrl

Senior Member
Messages
16,171
They help to bind or remove mycotoxins from your body often used along with some form of glutathione. Some binders are CSM, zeolite or bentonite clay, charcoal or in my case b/c I was allergic to everything at that time, oats and apple pectin.
 

jjxx

Senior Member
Messages
137
I did see his associates in his office for a duration of over a year, and did not work. They deal with similar symptoms but took me to a wrong direction. It may work for patients whose underlining causes are thyroid related. I do realize that their understanding of estrogen/progesterone and adrenal is rudimentary.