Vojta
Senior Member
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- 167
- Location
- Czech Republic
Is development of arthritis something common for people with ME/CFS? I developed joint pain after 5 years of ME/CFS like illnes when I was treated by antibiotics for suspected and probably wrongly diagnosed lyme disease. Repeated western blot and immunoblot negative, and years of antibiotics had no effect, not even herx.
Problem is there is damage to all of my joints now but all common tests for arthritis like ESR, CRP, RF, anti-CCP are negative, I don't have swelling. Only rheumatologist I saw didn't care at all.
After I developed this problem I took antibiotics again because I had nothing else and minocylcline stopped acute joint pain during first month and after 4 months when I stoped because development of other new problems, only joint paint was significantly improved symptom and it stayed for almost 6 months without any treatment. Now the joint pain and loss of cartillage got acutely worse again.
It seems no one is willing to treat me for this because I have negative tests. Although I read that it is possible to diagnose and treat arthritis even when all tests are negative.
Anybody have experience with this or any advice. I can barely move around house because of joint pain and it is progressive.
Problem is there is damage to all of my joints now but all common tests for arthritis like ESR, CRP, RF, anti-CCP are negative, I don't have swelling. Only rheumatologist I saw didn't care at all.
After I developed this problem I took antibiotics again because I had nothing else and minocylcline stopped acute joint pain during first month and after 4 months when I stoped because development of other new problems, only joint paint was significantly improved symptom and it stayed for almost 6 months without any treatment. Now the joint pain and loss of cartillage got acutely worse again.
It seems no one is willing to treat me for this because I have negative tests. Although I read that it is possible to diagnose and treat arthritis even when all tests are negative.
Anybody have experience with this or any advice. I can barely move around house because of joint pain and it is progressive.
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