trishrhymes
Senior Member
- Messages
- 2,158
I am also concerned that trying to study 12000 ME patients for a total of, say, £3 million only allows about £250 per patient. This could easily be eaten up just by costs of recruitment, sample collection, data analysis, admin, investigators salaries etc. leaving less than nothing to actually carry out any biological tests.
Given that I understand the Naviaux study costs over $1000 per patient just to do the testing, and the in depth Open Medicine Foundation study of seriously affected patients is costing $20,000 per patient, I can't see how anything meaningful can be discovered.
I therefore wonder whether a tiny range of cheap tests will be done, find nothing and be used to support the psycho-social model.
Also, given that it took about 5 years to recruit 600 patients for the PACE trial, how on earth do they expect to find 12000 in any reasonable length of time? Or is that the plan - make the study so big it eats up all the research funding and effort in this country for the next 20 years?
We need an awful lot more answers before we can support this study.
I wonder whether the petition might somehow raise these issues? Or does that make it too complicated?
I agree that the involvement of the wrong people is the key issue.
Given that I understand the Naviaux study costs over $1000 per patient just to do the testing, and the in depth Open Medicine Foundation study of seriously affected patients is costing $20,000 per patient, I can't see how anything meaningful can be discovered.
I therefore wonder whether a tiny range of cheap tests will be done, find nothing and be used to support the psycho-social model.
Also, given that it took about 5 years to recruit 600 patients for the PACE trial, how on earth do they expect to find 12000 in any reasonable length of time? Or is that the plan - make the study so big it eats up all the research funding and effort in this country for the next 20 years?
We need an awful lot more answers before we can support this study.
I wonder whether the petition might somehow raise these issues? Or does that make it too complicated?
I agree that the involvement of the wrong people is the key issue.