Hi again
@Misfit Toy I just reread some of these posts on here. It had been happy days for me on T3 only but not any more (more on that below). I so hope it works out for you this time. I presume you are getting some decent advice to help you with what you are doing?
Since this earlier discussion on here I have stopped my T3 only, even though I was feeling really quite good on it. Not sure yet if that was the right decision. My new Endocrinologist freaked out (as they do over here in the UK) at my low TSH and said I should reduce my dose. I was only on 55mcg so not high at all. I got down to 45mcg and was Okish after a few weeks, but when he got me to reduce further to 40mcg I began to have severe pain in my body. At that point he left his job to go elsewhere, so no chance to even discuss more with him and decided to have a little rest from Endos and go it alone for a while.
Even worse, I had a DEXA scan at his suggestion and found I had osteoporosis, and no idea if the T3 had caused it (having had a heel ultrasound test only 6 years before when I was on T4 and had low risk of osteoporosis!).
So it was at this point I decided to try out NDT, but while I get the T3 free from the NHS I have to pay for this (affordable though currently). I am getting help from someone on a Thyroid forum who believes that I have a chronic issue with my adrenals (which I have tried to address in the past), so am trying a different tack on that score now. I am 4 weeks in re the NDT and slowly getting there, though have had a run of health issues that make it hard to check out properly with what is happening.
I know you are in a much more complex situation than I am there, due to having no thyroid. That said, I don't know how much of mine has been destroyed after being 20years + hypothyroid. I gather that the antibody attacks destroy it in the end. Maybe not too much there now...........