- Messages
- 20
- Location
- New Zealand
@M Paine, I'm also in Auckland, just beginning trying to get some treatment for what is aptly described in someone's avatar as Cluster F--- Syndrome. I'm now on 400mg aciclovir twice daily as of Tuesday, prescribed by my GP, cos I asked her for it. I had shingles almost directly after surgery for acromegaly last year, which responded to aciclovir and I've also had EBV in the past, hence the reason I decided to wing it and try some aciclovir. Do you have an opinion as to whether that dose rate is likely to be effective in a slightly built person?
When you say positive for EBV and CMV, did you mean non-zero antibodies or meeting the treatment criteria thresholds described in hip's roadmap (and references within)? I'm keen to figure out how to get at least some of the testing done in NZ. Did your GP access it for you? Sorry for the dumb questions but I'm brain dead and struggling to figure this out fast enough to halt a rapid decline.
I've had a staph problem following last year, which seems to have been a triggering factor in my now getting CFS, which has started after only a year of being well following my last protracted medical fiasco. I talked to an infectious disease specialist earlier this week about the CFS and asked about antivirals. He was treating my staph with some success which helped me feel better, however, since I told him the other stuff which has developed he is now refusing to treat the staph anymore, cos that's not "the" problem. Reductionist twit. Perhaps we could swap notes on specialists who help and specialists to avoid.....
When you say positive for EBV and CMV, did you mean non-zero antibodies or meeting the treatment criteria thresholds described in hip's roadmap (and references within)? I'm keen to figure out how to get at least some of the testing done in NZ. Did your GP access it for you? Sorry for the dumb questions but I'm brain dead and struggling to figure this out fast enough to halt a rapid decline.
I've had a staph problem following last year, which seems to have been a triggering factor in my now getting CFS, which has started after only a year of being well following my last protracted medical fiasco. I talked to an infectious disease specialist earlier this week about the CFS and asked about antivirals. He was treating my staph with some success which helped me feel better, however, since I told him the other stuff which has developed he is now refusing to treat the staph anymore, cos that's not "the" problem. Reductionist twit. Perhaps we could swap notes on specialists who help and specialists to avoid.....