I have posted here a few times before and I seriously feel like I am losing hope of ever getting well again. About 2 and a half years ago my life took a turn for the worst. I lost a baby and everything went downhill from there. I had also had a root canal around this time. I was certain this was the issue after researching, and I had the tooth removed and checked underneath for any infection which they did not see.
Over the past 2 and a half years things have declined. I went from starting with two symptoms (Light sensitivity to indoor lighting-almost like my brain can't process it and everything just looks off), and constantly feeling drugged/poisoned 24/7. It never goes away.
Finally got an igenex test that was cdc positive for lyme and igenex positive. Diagnosed with lyme disease and started antibiotics. I could not tolerate them at all. I would get so bad head wise with head pressure and other issues that I went to the ER many times and they couldn't find anything. I felt like I was dying on antibiotics, and my doctor kept having to stop me on them. This didn't seem like a herx, because it straight up lasted for weeks. Every antibiotic we tried would give me some crazy reaction and I couldn't even get out of bed or walk in a straight line.
I decided to seek care elsewhere because many were leaving my doctor as she prescribed so many drugs at once for different things and it just seemed too much, and I felt like something else was going on. A friend recommended another doctor who I saw.
This doctor is very into the Shoemaker protocol for mold, and ran all labs on me for mold and diagnosed me with mold. He said I don't have the bad lyme gene, and he doesn't even believe that lyme is my main problem and doesn't particularly like igenex (note this doctor isn't a doctor who is like a regular doctor and doesn't agree with chronic lyme), most of his patience have chronic lyme, but he thinks igenex are over sensitive.
So after all these labs come back he starts me on welchol and wants me to test my home for mold. We didn't do csm because I have gallstones (although they aren't causing me any symptoms), and he thought welchol would be more gentle.
The first day of welchol I got severe burning around my chest area. I thought it was kinda odd but I thought maybe it is just heartburn. Day 2 and 3 were okay, but day 4 I felt so off balance, dizzy, and could barely walk in a straight line (kind of like what the antibiotics did to me). I am always off balance, but it makes it x10 worse, and I had the worst nausea that lasted for 2 days.
I checked in with my doctor and he said it is weird I am reacting so badly and he doesn't really know why, and he wants me to switch to activated charcoal. Has anyone else has craziness like this? I just don't know what to believe anymore. I feel like I am slowly dying and I honestly don't know what the hell I have at this point. I can barely function, my balance is so off I walk like a drunk person. I honestly feel so depressed and I can't ever see myself getting well. I just feel like I am too far gone.
Over the past 2 and a half years things have declined. I went from starting with two symptoms (Light sensitivity to indoor lighting-almost like my brain can't process it and everything just looks off), and constantly feeling drugged/poisoned 24/7. It never goes away.
Finally got an igenex test that was cdc positive for lyme and igenex positive. Diagnosed with lyme disease and started antibiotics. I could not tolerate them at all. I would get so bad head wise with head pressure and other issues that I went to the ER many times and they couldn't find anything. I felt like I was dying on antibiotics, and my doctor kept having to stop me on them. This didn't seem like a herx, because it straight up lasted for weeks. Every antibiotic we tried would give me some crazy reaction and I couldn't even get out of bed or walk in a straight line.
I decided to seek care elsewhere because many were leaving my doctor as she prescribed so many drugs at once for different things and it just seemed too much, and I felt like something else was going on. A friend recommended another doctor who I saw.
This doctor is very into the Shoemaker protocol for mold, and ran all labs on me for mold and diagnosed me with mold. He said I don't have the bad lyme gene, and he doesn't even believe that lyme is my main problem and doesn't particularly like igenex (note this doctor isn't a doctor who is like a regular doctor and doesn't agree with chronic lyme), most of his patience have chronic lyme, but he thinks igenex are over sensitive.
So after all these labs come back he starts me on welchol and wants me to test my home for mold. We didn't do csm because I have gallstones (although they aren't causing me any symptoms), and he thought welchol would be more gentle.
The first day of welchol I got severe burning around my chest area. I thought it was kinda odd but I thought maybe it is just heartburn. Day 2 and 3 were okay, but day 4 I felt so off balance, dizzy, and could barely walk in a straight line (kind of like what the antibiotics did to me). I am always off balance, but it makes it x10 worse, and I had the worst nausea that lasted for 2 days.
I checked in with my doctor and he said it is weird I am reacting so badly and he doesn't really know why, and he wants me to switch to activated charcoal. Has anyone else has craziness like this? I just don't know what to believe anymore. I feel like I am slowly dying and I honestly don't know what the hell I have at this point. I can barely function, my balance is so off I walk like a drunk person. I honestly feel so depressed and I can't ever see myself getting well. I just feel like I am too far gone.