paul80
Senior Member
- Messages
- 298
Thanks for the info. Like i said before, one of the cardiologists at my local hospital is listed on the POTS UK website as being an expert so i hope i get to see him.
Problem is i really don't know how to deal with GPs, and every time i go i feel terrible which makes it hard to argue well when your brain isn't working, which i'm sure you all understand.
I think my best bet is to take some printouts of hard evidence that they can't argue with. The problem is they don't have much time to read so theres only point in bringing the one or two most convincing pieces of evidence.
If any one has any advice on the best ones to bring, that would be great. I was thinking that something that proves it is very common for PWME to have orthostatic intolerance would be good. And the NHS page on POTS is something they can't ignore so i might bring that.
Problem is i really don't know how to deal with GPs, and every time i go i feel terrible which makes it hard to argue well when your brain isn't working, which i'm sure you all understand.
I think my best bet is to take some printouts of hard evidence that they can't argue with. The problem is they don't have much time to read so theres only point in bringing the one or two most convincing pieces of evidence.
If any one has any advice on the best ones to bring, that would be great. I was thinking that something that proves it is very common for PWME to have orthostatic intolerance would be good. And the NHS page on POTS is something they can't ignore so i might bring that.