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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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They didn't recommend anything for the migraine - they didn't even acknowledge in my discharge letter that I had had a migraine. All they focused on was the hyponatraemia, for which they blamed the drug desmopressin that I have been taking since the year 2000 for polyuria, as they have done before. This is clearly a misdiagnosis, over which I have been arguing with doctors for many years.@MeSci thanks for the link, I missed it in your post.
What did they recommend for you at the hospital? The symptoms you describe are scary.
Thanks for posting that. Any strategies for combatting unwanted vasodilation?
I often get urinary tract burning with my 'migraine' symptoms, but I don't think it's infectious as it goes away when the other symptoms do. So I am guessing that it's just inflammation.( I've also been having UTI symptoms with this migraine, and treating with antibiotics is helping both. I'm not recommending abx for migraine, just bringing up a possible cause for elevated NO.)
I often get urinary tract burning with my 'migraine' symptoms, but I don't think it's infectious as it goes away when the other symptoms do. So I am guessing that it's just inflammation.
As do people with findings like these from my CT scan in December:People with migraine have increased susceptibility to stroke.
indeed.There are new areas of low attenuation within the deep cerebral white matter in keeping with progressive small vessel disease. In addition there are numerous old lacunar infarcts in the basal ganglia on the left
I did a search for migraine aura on here, and didn't come across very much. I wondered if many other people have them, as I had thought they were pretty common in PWME. Any other thoughts on things that might help with them?
"Ocular migraines" produce a degree of temporary loss of vision in one eye and are considered more serious than "visual migraines." ]
Cold symptoms without the snot are common in ME - I think they are just PEM a lot of the time. But I had a full-blown streaming cold this time. Even lost my sense of smell completely.Hi @MeSci Well I did have the ONE migraine aura since Christmas, but it's definitely a big improvement so far for 2016. I keep a kind of symptoms diary and last January I had 4 apparently!
As for the colds thing. Well I seem to have a lot of what I call 'almost' colds this time of year. I feel I am constantly fighting something off - sore throat, nasal and sinus soreness and pain, and feeling tired an run down. I was talking about it with my herbalist yesterday and she thinks it could be autoimmune allergy rather than a cold, but I find it hard to tell though of course if it comes out as a full blown cold then I know. There are a lot of moulds around with all the rain.
Last January I did have bronchitis, but that's unusual for me.