Bob
Senior Member
- Messages
- 16,455
- Location
- England (south coast)
They're purposely not showing the slides to avoid showing any embargoed study results. Maybe that's how they got permission to livestream the whole morning.
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Yes, that link is good, sasha.Here's a google result from that hashtag, not sure if it's the best way to do it:
https://twitter.com/search?q=#cmrc2015
Who was that saying that we also need a big Valcyte study in the UK? Was that Holgate?
What I like about Holgate (if that's him - I'm rubbish at recognising faces) is that he keeps coming up with "what we should do next" ideas and immediately names the MRC funding mechanism that will get it done.
Very lucky to have someone who understands the system and is thinking big. I bet that will be very attractive to the MRC - these big plans.
I wonder what the funding announcement will be, later on today...
Ah. Thanks for that info.They're purposely not showing the slides to avoid showing any embargoed study results. Maybe that's how they got permission to livestream the whole morning.
They're purposely not showing the slides to avoid showing any embargoed study results. Maybe that's how they got permission to livestream the whole morning.
OK, I'm just repeating what Sonya said re showing slides:The technical person said that they'd tried out pointing the camera at the slides before they started but you couldn't see them because of the lighting. They didn't mention embargoes (and I don't think anything that Prof. Holgate said would have been embargoed).
I don't think she is displaying any bias at all, let alone 'very strongly'. She is tweeting rapidly, trying to relay what is being said in real time, while organising a live stream and responding to tweets and questions. Not an easy task. Nearly all of her tweets are about biomedical research. I wonder what bias the following tweet portrays...Unfortunate that her psych bias is coming through very strongly,eg trying to claim that Prof Montoya was passionate about including psychiatrists (not what he said) and that she'll put questions to the panel - but not about PACE because we musn't be "negative" about ANY research
Sonya Chowdhury said:Montoya: #MECFS is not a psychological illness but abnormalities in the brain
https://twitter.com/SonyaChowdhury/status/653872841587298304
Holgate definitely said to Montoya that the MRC should be paying to replicate one of his research studies but I missed what they were taking about. They mentioned Roche at the same time and Holgate said that Roche weren't likely to fund a study because of the patent expiring and that's a situation where the we should expect the MRC to step in. Was that Valcyte they were discussing?Who was that saying that we also need a big Valcyte study in the UK? Was that Holgate?
Holgate definitely said to Montoya that the MRC should be paying to replicate one of his research studies but I missed what they were taking about. They mentioned Roche at the same time and Holgate said that Roche weren't likely to fund a study because of the patent expiring and that's a situation where the we should expect the MRC to step in. Was that Valcyte they were discussing?
Re discussion about PACE question being negative...
"@SonyaChowdhury question not meant to be negative but reality is that we need a paradigmshift for so many pts waiting for so long for cure."
Sonya Chowdhury:
"I don't disagree. Fed need a paradigm shift and Holgate and Montoya said the same"
https://twitter.com/SonyaChowdhury/status/653919132782604289
This UK CMRC "Grand Challenge" thing that Prof Holgate mentioned sounded interesting - he was talking about setting up a workshop to bring the relevant stakeholders (including charities) together to formulate an action plan for "pan-UK approach to subphenotype, collect samples, integrate data, pathway analyses" (from SC's tweet - I didn't make notes).
I don't think she is displaying any bias at all, let alone 'very strongly'. She is tweeting rapidly, trying to relay what is being said in real time, while organising a live stream and responding to tweets and questions. Not an easy task. Nearly all of her tweets are about biomedical research. I wonder what bias the following tweet portrays...
But that's back to my original point too, she still put the psych spin on it when she had chance, it's one thing reporting what others say, another giving her opinion eg also claiming Montoya was passionate about including psychs in the research !!