Still doing great since Rituxan !

[bthompsonjr1993]

@bctjr1993 - Thank you for your kind wishes ! My first dose of RTX was given on Feb 23 ,2015.

On April 30,2015 I began to feel some little improvements.

By May 7, 2015 I really felt a relief in my joint pain, fatigue and brain fog. In June and July of this year I felt even way more improvements, the brain fog and fatigue is much much better and I especially noticed I have less burning in my feet and my ability to have a decent blood pressure has improved. (I am on less medications ) !

I don't have notes all over the house to remind me of things anymore, I am actually doing my own cleaning and organizing, my poor cleaning lady is out of a job !

I still struggle with being able to do several things in one day without feeling drained. I compare myself with my peers that are my age or are a bit older and I see they can do more without feeling wiped out. So I am not perfect but I am not bedridden as I was so you see any tiny improvement for me is pretty huge.

Like getting dressed everyday and fixing my hair, doing make up and having the desire put on my earrings are all very big markers of improvements for me. I don't think I got dressed in real jeans or put on earrings for years and now I am doing those things. I used to get dressed up for photo's when my family came to visit and I would be so wiped out from doing that I would have to go back to bed after the photo.

This year when my family came and we did photo's I was laughing and had lots of energy! (See attached photo, my brother said he was fat and I had to show he wasn't. My siblings come every year and this was the first year in a very long time I actually had fun !

Of course I wonder how long will this last, when do I get a maintenance dose and will it work again. I wonder will I have bad side effects down the road, but I am just taking each day as it comes.

Thank you for sharing your experience with Dr. Montoya, that is awesome you got to see him and thanks to you I am even more committed to contacting him. ( putting something together this week. )

I am so happy for you! You look great in that photo, that is awesome to see. Thank you for your reply, I wish you continued good health!

 

[Gingergrrl]

This year when my family came and we did photo's I was laughing and had lots of energy! (See attached photo, my brother said he was fat and I had to show he wasn't. My siblings come every year and this was the first year in a very long time I actually had fun !

@Rebecca2z Beautiful picture, Rebecca, and thank you for sharing it. You look so happy and radiant!

 

[Rebecca2z]

Last week I went to the coast, I was able to walk the beach everyday and go to dinner in the evenings, just like a normal human being ! See photo's !

 

[snowathlete]

Last week I went to the coast, I was able to walk the beach everyday and go to dinner in the evenings, just like a normal human being ! See photo's !

So pleased for you, and totally inspired and encouraged by the change in you. Awesome!

 

[Rebecca2z]

I contacted Dr. Montoya ~ Hope it helps the fight !

 

[Sallyagerharris]

Struggling today so really good to see some positive news.

Thank you

Sally

 

[Rebecca2z]

I am so sorry Sally, I often feel terrible posting on how I am doing, I make a very conscious effort to tone down my enthusiasm, I don't want to add to anyone's misery.
I am hoping you have a better day tomorrow.
Healing Hugs,
Rebecca

 

[Gingergrrl]

I often feel terrible posting on how I am doing, I make a very conscious effort to tone down my enthusiasm, I don't want to add to anyone's misery.

Please don't and it helps me to hear that someone who suffered as much as you did for 30 years is now doing so much better. You deserve it and have nothing to feel guilty about. My situation is different than yours but if I do improve and can walk on the beach without a wheelchair, I will post a picture, too, and know you will be happy for me! Your recovery is hard earned and well deserved.

 

[Rebecca2z]

Thank You @Gingergrrl - Oh I would be very happy for others too if they posted they were better, so thank you for putting it that way!
Your post was so kind, I am humbled by you and others still suffering.

 

[daisybell]

@Rebecca2z please don't tone it down! You are a source of huge hope, and that gives us strength. I love reading your posts!!!

 

[Rebecca2z]

@daisybell - thank you for being supportive and it is a relief to know I am not adding to anyone suffering for that is so opposite of what I would want.

This is such a bittersweet situation to be in, I am thrilled beyond words to be among the living again but I hate knowing there are others living the way I used too.