Interesting...
http://campaign.justgiving.com/charity/investinm-e/science-politics-and-me
This seems to have launched on 27 August and has already raised £230.
More info here, including:
http://campaign.justgiving.com/charity/investinm-e/science-politics-and-me
Invest in ME on JustGiving said:ME patients are often not in a position to be heard and misconceptions/ignorance about the disease is compounded by a prejudiced denial of ME - as an ‘aberrant belief’ rather than a devastating physical disease.
Dr Gibson led an independent Inquiry into ME in 2006 which made a number of recommendations yet still the media and public seem unaware of the real suffering that continues due to vested interests that affect policies in healthcare, academia and the media.
The book will definitively explain the influence of politics on healthcare – and ultimately ME patients.
With the help of members in the European ME Alliance this book will promoted around the world.
This seems to have launched on 27 August and has already raised £230.
More info here, including:
IiME said:[...] Dr Gibson feels it is necessary to look at the effects that politics and the actions of some have influenced the way ME has been, and continues to be the subject of misrepresentation, inappropriate media reporting, ineffective research funding and a pervading prejudice that needs to be exposed.
The book will look at where we have come since that Inquiry and why.
The book will need legal scrutiny before publication
Dr Gibson had started interviews with knowledgeable individuals at this year’s IiME London conference and established new contacts.
Visits are possible to the USA and countries within Europe (Norway, Sweden, Belgium, Denmark etc.) where local interviews can be carried out.
These may be extended to other countries.
Dr Gibson is familiar with the political events in the UK and the setting up the Norwich centre grouping.
It is important to understand the politics of ME and how the ‘establishment’ in most countries reacts to calls for support for financial & otherwise.
IiME is a member of the European ME Alliance (EMEA) and members of EMEA will be helping with this book and promoting it.
Dr Gibson will be visiting researchers, clinicians, advocates, patients, carers and others to produce an update and an analysis of ME - the Science and Politics behind the way ME is treated.
In order to fund this a JustGiving page has been set up and donations are invited to help pay for the cost of writing this book.
The target is £15,000 and this will cover travel expenses £5000 and research/secretarial support £10.000.
The JustGiving page for donations is - http://campaign.justgiving.com/charity/investinm-e/science-politics-and-me
Work on the book begins now and this page will be updated as the project develops.