Hi everyone, I have had reactivated EBV and CMV for the past two years. Titers show no interest in going away. Throughout this ordeal, my main symptoms have always been very neuro based. Lots of head neuralgias and muscle spasms. Am I tired, sometimes and for me, yes I'm definitely not how I used to be, but I can't really say fatigue is a main complaint for me. Because I don't really feel too much fatigue I still exercise or run around doing normal activities and yes I pay for it 48 hrs later, but mainly with increase in neuro symptoms.
If anything, Im just damn tired of battling the unrelenting cranial nerve pain. I read a lot of your fatigue stories and I don't envy you that, but this is a whole other side of the coin hell.
I am suspected as having had exposure to Lyme as well (having some Lyme specific bands - but not CDC positive). I am being treated by a LLMD and she is still teasing out whether this is mainly the Lyme or the viruses. Based on your stories which are so fatigue based, I wonder then if what Im feeling is really the Lyme and not so much the virus. Not sure whether the cause really matters anymore. I was just wondering if there was anyone out there like me. I seem to be an outlier.
Also, can you have CFS and not really be tired? Meaning, Ive had active viruses for two years that won't quit- does that qualify my case automatically?
Not sure where I stand here!
Best wishes and prayers to you all.
L
If anything, Im just damn tired of battling the unrelenting cranial nerve pain. I read a lot of your fatigue stories and I don't envy you that, but this is a whole other side of the coin hell.
I am suspected as having had exposure to Lyme as well (having some Lyme specific bands - but not CDC positive). I am being treated by a LLMD and she is still teasing out whether this is mainly the Lyme or the viruses. Based on your stories which are so fatigue based, I wonder then if what Im feeling is really the Lyme and not so much the virus. Not sure whether the cause really matters anymore. I was just wondering if there was anyone out there like me. I seem to be an outlier.
Also, can you have CFS and not really be tired? Meaning, Ive had active viruses for two years that won't quit- does that qualify my case automatically?
Not sure where I stand here!
Best wishes and prayers to you all.
L