Chronic fatigue syndrome and fibromyalgia following immunization with the hepatitis B vaccine

[snowathlete]

The main issue for me is that they are oversold as being safe. People aren't given a proper chance to make an informed choice knowing the real risks. Instead, governments prefer to make this choice for us. But they make it based on the greater good and crowd benefit - individual risk isn't much of a consideration. Worse, if you are unfortunately to have a negative consequence as a result then you're pretty much on your own. Governments don't like to research why things go wrong as it highlights that things do go wrong, and potentially might show that negative reactions cannot be prevented. In that situation, the government would be more than happy to continue, but the public might not. Can't have that.

 

[dannybex]

I had a personal experience of an immunostimulant triggering an autoimmune disease: I unfortunately precipitated rheumatoid arthritis in a family member recently, by giving them the immune stimulating supplement methylcobalamin, at a sublingual dose of 10 mg (the equivalent of say a 500 mcg methylcobalamin injection). Within 12 hours of taking this methylcobalamin this family member had terrible pains in the joints; these pains persisted permanently, and were later diagnosed as rheumatoid arthritis, which was treated with RA drugs for a while.

This family member never had any joint problems before, but within 12 hours of taking a high dose of methylcobalamin, the autoimmune condition of rheumatoid arthritis had been triggered. Methylcobalamin stimulates CD8 T cells and natural killer cells.†

This adverse reaction to methylcobalamin I imagine is pretty rare. (And may only occur in those with certain susceptibilities: I read that people with high histamine may have adverse reactions to methylcobalamin, and this family member suffers from high histamine).

But I found it astounding how a one-off immunostimulatory event like this could instantly trigger an autoimmune condition, which then remains for the rest of your life.

@Hip , I'm curious where you read that those with high histamine may have bad reactions to methylb12? From what I've read, methylation is one of the two main ways to lower histamine levels.

 

[Hip]

@Hip , I'm curious where you read that those with high histamine may have bad reactions to methylb12? From what I've read, methylation is one of the two main ways to lower histamine levels.

It was not in an authoritative source unfortunately, but just a small comment I read on a forum somewhere (I don't have the link). But it was the only clue I could find as to why this sublingual dose of B12 methylcobalamin was able to trigger rheumatoid arthritis literally overnight.

 

[dannybex]

It was not in an authoritative source unfortunately, but just a small comment I read on a forum somewhere (I don't have the link). But it was the only clue I could find as to why this sublingual dose of B12 methylcobalamin was able to trigger rheumatoid arthritis literally overnight.

Thanks Hip. That is unfortunately, but also really odd. I wouldn't consider it permanent -- hopefully it isn't -- but at the same time I haven't really had the time to look into RA.

 

[sianrecovery]

Interesting thread. I was a clinician in the NHS, and was given a Hep A/B shot by occupational health. And TB. I had previously been treated with interferon/ribavirin for Hep C. The fatigue symptoms began a few weeks after the shot, but I've never assumed there was a causal relationship.

 

[acer2000]

This is a BIG issue. Vaccines are tested for safety with respect to individuals, and typically adults. They are often not adequately tested on children, and almost never tested in combination or series. They are also not tested with a range of medical conditions that might alter the response. In other words. they are tested in isolation under a reductionist paradigm. The real world is not so simple.

Vaccines do save lives. They do prevent disability. Yet they are also not treated with the caution that is necessary in my view.

There was a podcast on the BBC about this issue several years ago. I really wish more research would be done with respect to the timing and combination issues and their effect of safety and efficacy. According to the podcast their are differences in effects depending on timing, combination, and sex. Some of the effects aren't so good.

BBC Discovery - The Vaccine Detectives (2 parts)

http://www.bbc.co.uk/programmes/p00b1z47

http://www.bbc.co.uk/programmes/p00b6dt4

 

[Wally]

Perhaps this article may be of interest to review, as it relates to theories, questions and history related to HepB vaccine development and testing. I suggest looking past the title of the article and read some of the information set forth in the body of the article.

http://www.infowars.com/hiv-aids-wa...n-for-eugenics-experiment-suggests-us-doctor/

 

[morse27]

Hi , i've the diagnose of ASIA syndrome induce by "Squalene" adjuvant in H1N1 flu vaccin PANDEMRIX of gsk ? and the terrible illness of veterans of the first gulf war , i've receive this diagnose by GSK few weeks after flu shot vaccine and by an other neurologist in france specialist in myofasciitis in macrophage , ,
There is some difference with ME/CFS and ASIA synfrom,
i can say exactly the day an time of beginning !, very very strong pain in the rear brain and spinal corder for 48 hours , the first symptom for me after the soudain brain attack is "diabetis insipidious " , fatigue, decreasement of sleep duration (after 2 month : 30 min for night with drugs!!) , lack of deep sleep N3(2%) , N4 (0%) , impotence, strong loss memory, impossible to remember my credit card number, where my car was park .....dry symptom, severe gastro intestinal problem , so i think i'll going in Israel to meet prof Yehuda Shoenfeld to learn what sort of therapy will be necessary, i test rituxan , but this bio therapy has not be tested on this illness . regard

 

[Thomas]

@morse27 thanks for the update. Has Prof. Shoenfeld had good results with IVIG in both ASIA and ME/CFS?
Thank you for sharing your story.

 

[*GG*]

Hi , i've the diagnose of ASIA syndrome induce by "Squalene" adjuvant in H1N1 flu vaccin PANDEMRIX of gsk ? and the terrible illness of veterans of the first gulf war , i've receive this diagnose by GSK few weeks after flu shot vaccine and by an other neurologist in france specialist in myofasciitis in macrophage , ,

There is some difference with ME/CFS and ASIA synfrom,

i can say exactly the day an time of beginning !, very very strong pain in the rear brain and spinal corder for 48 hours , the first symptom for me after the soudain brain attack is "diabetis insipidious " , fatigue, decreasement of sleep duration (after 2 month : 30 min for night with drugs!!) , lack of deep sleep N3(2%) , N4 (0%) , impotence, strong loss memory, impossible to remember my credit card number, where my car was park .....dry symptom, severe gastro intestinal problem , so i think i'll going in Israel to meet prof Yehuda Shoenfeld to learn what sort of therapy will be necessary, i test rituxan , but this bio therapy has not be tested on this illness . regard

Has anyone mentioned to you to break up your postings? Very hard to read such a large text of writing for lots of people. I guess not for you?

GG

 

[barbc56]

Moreover, both flu and tetanus vaccine are perceived as 'routine' and may easily be forgotten. Hep B is something of an event because it is associated with getting a new job, risks, uncertainties etc. I remember my Hep B vaccinations forty years later but have no idea when I last had tetanus.

I can remember not only the year but the month as the vaccine was offered free through the school district where I worked. But don't ask me about yesterday as my memory is not that reliable.

Fortunately, the vaccination didn't appear to have an impact on my health.

My personal opinon is that, the risk is analogous to that of Guillain barre syndrome, which is associated with vaccination, but is more common after viral infection, than vaccination

As an interesting aside, when I had my flu vaccine this year, the nurse asked if I had ever had Gullian Barre syndrome. However, I don't remember if she asked me this in the context of after a vaccine, in general or both. That was certainly a first.

Are people who've had Gullian Barre more susceptible to getting it after a vaccination?

I wonder if the popularity of immune boosting supplements such as Echinacea and spirulina may be another factor contributing to the increased incidence of autoimmune diseases

If a supplement does have medical properties, I think that's certainly plausible. This is one reason I think supplements should be categorized as drugs and not food as it leads to less restrictive quality control measures.

Barb

 

[Misfit Toy]

I had the pneumovax vaccine in 2013 and got pneumonia! Good times!

As a person who was on IVIG and who has CVID...many on IVIG continue to have extreme pain and fatigue. Someone posted about that today....a question as to has IGG helped pain and fatigue. The answers were an astounding NO. I was shocked.

My fibro was through the roof on sub-q and IVIG.

But, it helps infections.

 

[morse27]

Has anyone mentioned to you to break up your postings? Very hard to read such a large text of writing for lots of people. I guess not for you?

GG

Sorry , i have too this problem , i'll try to remember this for next post