minkeygirl
But I Look So Good.
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- 4,678
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So I finally got an immunologist to diagnose me with hypogammaglobulinemia and wants to start me on a 6th month trial of SCIG.
Here's the problem. He glommed on to my symptom of fog and wants to use that to determine effectiveness of the treatment by having me get a Cognitive Assessment. This is not to decide if I'm stable, only to see if the treatment works.
I think he's nuts and told him. There is no test that I know of that is used to assess the efficacy of the treatments, that it's usually subjective reporting. And who knows what is causing my fog. I've been discussing with my NP the idea that it could be thick blood and by treating that it'll clear up. Fog is just one of many issues I have.
And I'm pretty sure @Daffodil said immunoglobulin caused fog for her
So how can I get this guy of this track and what can I get him to use instead of? I think he may need something to justify to my insurance (medicare HMO) to get it and continue.
My next appointment is going to be to go over treatment plan. I really don't want to 1. waste my time and energy on this assessment and 2. it's not a valid test and 3. WTF?
Any Ideas? Please tag me so I get an alert.
Here's the problem. He glommed on to my symptom of fog and wants to use that to determine effectiveness of the treatment by having me get a Cognitive Assessment. This is not to decide if I'm stable, only to see if the treatment works.
I think he's nuts and told him. There is no test that I know of that is used to assess the efficacy of the treatments, that it's usually subjective reporting. And who knows what is causing my fog. I've been discussing with my NP the idea that it could be thick blood and by treating that it'll clear up. Fog is just one of many issues I have.
And I'm pretty sure @Daffodil said immunoglobulin caused fog for her
So how can I get this guy of this track and what can I get him to use instead of? I think he may need something to justify to my insurance (medicare HMO) to get it and continue.
My next appointment is going to be to go over treatment plan. I really don't want to 1. waste my time and energy on this assessment and 2. it's not a valid test and 3. WTF?
Any Ideas? Please tag me so I get an alert.