Rebecca2z
Paradise, Ca
- Messages
- 248
- Location
- Paradise Ca
I had 3 treatments and one more to go with Rituxan, I am also taking methatrexate and I had very high doses of steroids as a pre-med before the RTX was given and this may be the whole reason I feel so great or maybe a bit of both, but in my weak and frail state I have tolerated the 3 rounds of RTX just fine. I know it is scary to read about some of Rituxan side effects ( My husband read them, I didn't want to know) But the treatments are not bad, they are long however, 7 hours for the first round and 6 hours for round 2 & 3. Maybe this info will help others who want to consider this treatment if ever offered to to CFS patients.
If this great feeling I am experiencing is from the steroids, I would expect it to fade. But I wanted to share, that after the 3rd round of RTX I felt way stronger and much clearer in my thinking and nowhere near the fatigue. I am not sure what happens next, I am waiting to hear from Stanford doctors, (like do I have follow up Rituxan in the future. )
I wanted to share this in hopes others can ask their doctors about Rituxan. I shared a more detail story in the introduce yourself if you care to read more.
I find it is very very hard for me to feel this amazing while I know others are suffering, true suffering that no one does a single thing for.
I want to scream from the top of the world "HELP THESE PEOPLE WITH CFS " stop discounting them, they are truly suffering.
Hugs,
Rebecca
If this great feeling I am experiencing is from the steroids, I would expect it to fade. But I wanted to share, that after the 3rd round of RTX I felt way stronger and much clearer in my thinking and nowhere near the fatigue. I am not sure what happens next, I am waiting to hear from Stanford doctors, (like do I have follow up Rituxan in the future. )
I wanted to share this in hopes others can ask their doctors about Rituxan. I shared a more detail story in the introduce yourself if you care to read more.
I find it is very very hard for me to feel this amazing while I know others are suffering, true suffering that no one does a single thing for.
I want to scream from the top of the world "HELP THESE PEOPLE WITH CFS " stop discounting them, they are truly suffering.
Hugs,
Rebecca
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