Kati
Patient in training
- Messages
- 5,497
I very much agree that we'd have to wait at least six months before launching a campaign that we hope to have go viral. But I also think it is likely to take at least six months to fully develop such a campaign.
Just a comment about making something go viral, I am afraid that this ice bucket challenge was a wonderful marketing genius, but how many great ideas just don't make it viral? The campaign succeeded and I suspect far exceded expectation, and I give them my hat for that. They truly deserve to be congratulated and supported for their cause, and I am excited for them.
For our cause, I think our best bets would be in helping out Jen Brea and Ryan Prior's films in educating the public about what this disease is. Edit to add: and support Loewellyn King's idea about having a lobbyist in Washington
i may be wrong, but ALS doesn't have an obvious stigma, only it's deadly and people all end up in a coffin quite rapidly. We are facing an enormous stigma, so in order to convince people to sympathize to the cause we have to tell them the stories.
Through 2 different movies, we have an opportunity to tell our stories to the world. Ryan Prior is looking for volunteers to stage a screening in their communities. If each one of us stage a screening open to the public, in libraries, perhaps in movie theaters, perhaps in schools, then we are passing the word around and we are moving forward.
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