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MeSci i agree i dont think he has read much of the cfs research as it tells in many of his replies. He says that staph stops us from producing nk cells, we know by the science produced in cfs/me that we dont have a problem with producing nk cells, we have plenty of nk cells, they just dont work.
Im not saying im cured but if its staph then how does antivirals improve someone with a bacterial infection? How do others with cfs improved through other treatments. Some have tested positive for entroviruses and have improved treating this. Others with ampligen, some with abx to treat mycoplasma and others treating chlamydia pneumonia. I think this shows there is more then one infection involved in cfs/me and at this stage sub grouping is important to help get the right treatment.
Early threads it sounds like he got an STD but if you read up on cfs/me many start with some type of viral infection, cold/flu, respiratory infection, glandular fever, enterovirus and a minority have said after a sexual encounter, many of us cant relate a sexual encounter to the onset of cfs/me, not that it doesnt happen but its not something that happens with every cfs/me person which is how he is trying to portray things.
There is just too much conflicting info, he mentions its undetectable but now he's suggesting to get tested at bioscreen, how does that help, maybe he's getting a cut of it. Even if we do this test, then we explain to our doctor that we require antibiotics for this infections for bacteria that everyone has in their gut. Come on, we need more then this, explains why one would get laughed at going to a doctor with this.
Maybe he has improved on the cocktail of abx because he has a mycoplasma infection or chlamydia pneumonia or just improved through the anti inflammatory effects of abx, or some other bacterial infection. Has he been tested for all these infections? I dont know, but u think he would have mentioned ruling these other infections out.
It is known that bacteria or viruses that arent pathogenic can become pathogenic when the immune system is suppressed from immune defiencies, HIV or those on immune supressant drugs for organ transplant or dare I say low nk function. This staph infection in the gut could be from some type of immune supression.
Saying he's a millionaire with companies in 2 countries doesnt prove his theories, i dont even know why this was mentioned other then to big note himself. He hasnt mentioned which criterias that were used to diagnose the people he sent to bioscreen to show they have normal bacteria. I would guess that he doesnt even know there are different criterias used to diagnose cfs/me. Maybe he doesnt have cfs/me but some chronic infection.
Theres no proof in anything, its all hear say. Thats fine he can have his pet theory as we all do but then many of us dont go around saying we know everything. He didnt even know who Lipkin was, so that shows how much research he has done into cfs/me.
After typing all this, i realised it is what he wanted, as he stated he wants us to go after him. Im not doing this for his jollies but so others can read this thread and realise that there is no substance in what he says and to be careful.
cheers!!!
