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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Just attended a meeting where Doctor Fluge spoke last week at Stavanger University Hospital. They are moving forward and are preparing their paper for publishing. They where not able to give us all the details of the results of the study they have been conducting as that would make it more difficult to be published in pair reviewed journals, but there were clearly some interesting developements.
On a question from one of the audience members they did however suggest that non experimental treatment using Rituximab could become a reality in 3-4 years. I didn´t get the impression that they were "stuck" because of lack of funding in any way (of course funding is always a challenge but I guess they are able to work within the limits of what they have).
It is as fair to say our immune systems are overactive as underactive. There are imbalances, with some parts given a big oomph, and other parts suppressed.