Hi all - been away a long time, but still lurking every now and then. Mainly been away due to an overalll improvement and so getting on with a busier life but also busier life leaves little energy for forums. I find i do better as well if i keep my computer use down.
I have been wary of posting about improvements as every time i have in the past i have gone on to have a major crash and it seemed like i was saying i was better when i really wasn't. The situation now is that i am much improved on where i was two years ago. I am not better and am currently in a mini crash (hopefully short!) in general i have more energy, less symptoms overall and more stamina. Still using my wheeelchair for longer trips and'walks' but able to go out frequewntly and do plenty of housework without much resting in the day at all.
I saw Dr Skinner twice since May and have been taking ArmourThyroid slowly working up my dose. His theory (which i do not necessarily subscribe to) is that many cases of M.E are actually Hypothyroidism that is not showing on labs - for various reasons. I know it's not a new theory, but he has made so many patients well that i thought it was worth a shot - i have many of the symptoms of Hypo and have spent time on Thyroid forums and the similarity of their symptoms to many M.E ones is striking.
Dr Skinner himself is an interesting man - kind, compassionate but very opinionated! The Artmour thryoid seems to be helping -although he seemed surprised at last consult that i wasn't 'cured' (alarm bells for me) I am now titrating up my dose till i hit two grains in the hope this will make me better, but its early days and i am not sure.
Yes i do feel quite a lot better - BUT i was improving anyway
summer is always a better time for me
i have been living in a caravan while my house is rented out for the summer so not much walking about during the day and no stairs etc.
I know there are others on the forums who take Armour or similar but are still ill with M.E/CFS and i was wondering what others experiences where with it. In my heart i believe it will help a lot, but i don't truly beileve it will cure me. I am one of those who has had a long near remmission before so this could just be my pattern anyway - and when i crashed down 5 years ago now it was very severe - dont ever want to go there again.
Well i am rambling now. But i felt the need to reconnect with my PR buddies and those who have helped me so much over the past years. Would also be interesting to see what others have to say about Armour, being Hypo or Dr Skinners theories.
All the best!
Justy.x
I have been wary of posting about improvements as every time i have in the past i have gone on to have a major crash and it seemed like i was saying i was better when i really wasn't. The situation now is that i am much improved on where i was two years ago. I am not better and am currently in a mini crash (hopefully short!) in general i have more energy, less symptoms overall and more stamina. Still using my wheeelchair for longer trips and'walks' but able to go out frequewntly and do plenty of housework without much resting in the day at all.
I saw Dr Skinner twice since May and have been taking ArmourThyroid slowly working up my dose. His theory (which i do not necessarily subscribe to) is that many cases of M.E are actually Hypothyroidism that is not showing on labs - for various reasons. I know it's not a new theory, but he has made so many patients well that i thought it was worth a shot - i have many of the symptoms of Hypo and have spent time on Thyroid forums and the similarity of their symptoms to many M.E ones is striking.
Dr Skinner himself is an interesting man - kind, compassionate but very opinionated! The Artmour thryoid seems to be helping -although he seemed surprised at last consult that i wasn't 'cured' (alarm bells for me) I am now titrating up my dose till i hit two grains in the hope this will make me better, but its early days and i am not sure.
Yes i do feel quite a lot better - BUT i was improving anyway
summer is always a better time for me
i have been living in a caravan while my house is rented out for the summer so not much walking about during the day and no stairs etc.
I know there are others on the forums who take Armour or similar but are still ill with M.E/CFS and i was wondering what others experiences where with it. In my heart i believe it will help a lot, but i don't truly beileve it will cure me. I am one of those who has had a long near remmission before so this could just be my pattern anyway - and when i crashed down 5 years ago now it was very severe - dont ever want to go there again.
Well i am rambling now. But i felt the need to reconnect with my PR buddies and those who have helped me so much over the past years. Would also be interesting to see what others have to say about Armour, being Hypo or Dr Skinners theories.
All the best!
Justy.x