RUkiddingME
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Hey gang I just posted an update to my blog Valcyte 2013. I am beyond happy, excited and hopeful!!
http://forums.phoenixrising.me/index.php?entries/valcyte-2013-week-15.1387/
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Hey gang I just posted an update to my blog Valcyte 2013. I am beyond happy, excited and hopeful!!
http://forums.phoenixrising.me/index.php?entries/valcyte-2013-week-15.1387/
Thanks Scavo!! On 900 mg a day at breakfast. Was only on 900 mg twice a day for first three weeks.Congrats very happy for you! Are you still on 900mg twice a day?
Thanks so much it's all so hard to believe!! I will post my viral titters as soon as I get my results back.Congratulations RU - How exciting!! Wish you all the best as you test out your new limits and engage with your surroundings everyday. Please continue to post and let us know how you are doing, I would love to know if your HHV-6 titers have gone done in accordance with your symptoms. I haven't read you entire blog, so please forgive me if you have answered this already. I have heard several people report that while taking AV's for their high EBV titers, that the titer levels didn't seem to rise or fall according to how they felt.
So happy for you - Woohoo!!!
Thanks! It is truely amazing! I am enjoying every second. I hope you can get your hands on it. It took me 1.5 years to convince the drs to put me on it.Wow, that's fantastic! Congratulations! I'm really glad you're so much better and I hope you're enjoying every minute.
Thanks for posting about this. I've got high HHV-6 titres and am trying to get Valcyte.
Thanks Scavo!! On 900 mg a day at breakfast. Was only on 900 mg twice a day for first three weeks.
Thanks Heaps! Yep until we make the NY Times we are full of S@&t right? Lol. Sure would be nice to have a nice survey like the Famvir one done up for Valcyte, unfortunately my brain is still too fried to attempt anything like that, plus it is hard to have all the ex and current Valcyters to visit the site and see a survey without getting notified of its existence. I am always so surprise to see how many of us were physically active in sports and very athletic in general prior to illness onset. I do believe it could be one of the triggers in viral reactivation.rukiddin u have joined the placebo group with myself, soc and a few others who have improved lately on valcyte but because its not published in the NY times, it isnt proof it helps.
Thats great u have improved, now we have to try and get a group of us who can exercise to a level of normal people without getting pem etc. I find i dont feel sick all the time but just have that bit of lethargy left, still sleep issues and restless legs but even they arent as severe as they once were.
maybe we need a thread of valcyte responders and nonresponders with dosages used and length of treatments, also other antivirals would be good to see too.
Thanks Heaps! Yep until we make the NY Times we are full of S@&t right? Lol. Sure would be nice to have a nice survey like the Famvir one done up for Valcyte, unfortunately my brain is still too fried to attempt anything like that, plus it is hard to have all the ex and current Valcyters to visit the site and see a survey without getting notified of its existence. I am always so surprise to see how many of us were physically active in sports and very athletic in general prior to illness onset. I do believe it could be one of the triggers in viral reactivation.
Hey captain, I just found this old post of mine, hope it helps, also if you go on my previous blog entries, I have all my viral numbers listed at the bottom. Here are the tests I had done;
Thanks . That's why I didn't use the cure word. It's my miracle. The fact that I am not stuck in bed unable to use my body or any of my senses like before is a miracle for me and proof that Valcyte is doing something. I am currently functioning about 30% of normal.A possible miracle! I am surprised someone hasn't objected to that considering how much flack people get for using the 'c' word. Maybe you are experiencing abnormal wellness beliefs that are causing you to engage in wellness behavior.
Seriously, it is very encouraging to hear that someone has found an appropriate treatment.