Jarod
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I am also embroiled in disability politics in hospital. That will teach them for parking me here!
Ha! I had a feeling that would happen!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I am also embroiled in disability politics in hospital. That will teach them for parking me here!
The big news is I decided to publish my book in stages, each subject to public review and later revision. I hope to put the start out there next year or the one after (doh, hopefully not that long). The intro will be like 200-400 pages. I did mention it will be a big book didn't I ?
I am also embroiled in disability politics in hospital. That will teach them for parking me here!
I think Willow should get the PR Sleuth Award for finding me. She got my home number from mutual friends and rang and got my neighbour on my phone. That deserves an award I think.
Maybe you will have a part in making it happen. If they continue to monitor you after you return home, they may see that even after your leg heals you are disabled and continue to provide you with appropriate services. At least we can hope.My point is writing this last bit is this: when I get home I will get an additional review (social/OT) to make sure I can cope, have groceries, etc. I will get options for home delivery of meals. When will this be available to ME patients? When do they get ANY practical review? When is it going to be recognized, in practice and not theory, as a highly disabling condition?
Things need to change. Things can change. We just have to figure out how to make it happen.
For the ladies, there is a doc here who resembles McDreamy or McSteamy or whoever on Greys Anatomy. Doesn't do anything for me but you might not find it all bad here.
For the guys, one of the nurses looked like Ashley Scott, only taller and more exotically beautiful. Sigh. Lets call here Raven Hair, her pseudonym,
Then there was Sandy Hair. She looks like Rene Zelweiger (spelling, I can't search and post with this connection). She was so darn nice that if I were half my age with twice my health I would have asked her out a hundred times already ( I can sense a hypothetical restraining order here). I will post more when I have a real connection. Sigh. Double sigh.