In the UK we have no chance of Ampligen.
Please does anyone know of an M.E. forum where we don't have to plough through threads with long posts of pro-Wessely/Sharpe/White etc propaganda, because I am too ill to cope with it?
If you think that what I have written is 'pro' any of those names you are mistaken, Min. If you do not like what is written, what you feel you must 'tolerate', then report the offending comment.
Ampligen will stand a better chance in the UK -
if it gets past the FDA later this month. If anyone is taking bets, then I would have to say, I bet that it will not result in approval. But I'd be happy to be proved wrong.
Hemispherex will be asked to produce more and better clinical evidence. If some want to interpret this further delay - should it indeed happen - as in some way "reflective of the prevalent opinions and power in the ME-world" i.e. your defined 'psych-social lobby' - then fine. But you'd be wrong. Just saying. Does that make me a 'bad boy' of the 'psycho-social camp'?
You know, if you read my last post and what it contained from Prof Hooper you might find some comfort. Then again you might not. As ever these debates all boil down to opinion, semantics and interpretation. There is unfortunately - and I mean that - a great absence of evidence for anything in the ME-world. You think I don't want some answers, Min? After 15 years? You'd be wrong to assume I didn't.
Though I have to say, as above, some of what Hooper (or whoever did write this latest piece), is worthy of note. Again it depends on your perspective and interpretation. Hence, debate. I like to debate, Min, what can I say? Here I am basically stuck, trying to do what you no doubt are trying to do, coping as best I can. If we disagree over something then fine, call me on it. I am a quite reasonable and rational person - though some might disagree
Extracts from Hooper's latest:
http://www.meactionuk.org.uk/the-saga-of-science.htm
The Saga of Science
Professor Malcolm Hooper 2nd December 2012
Today’s Independent on Sunday publishes a letter signed by 27 medical professionals -- who may be described as supporters of the psychosocial model of ME/CFS -- in which they refer to the harassment of some researchers working in the field.
You see here (bolded) I think that 'he' perhaps intentionally misses the point. To say this he is endorsing what he later believes to have been the case, that of an impasse between the 'psychosocial model supporters' and the 'biomedical' white knights. But then I've said this above. Interpretation. Opinion. Whatever...
It is regrettable that the wholly unacceptable actions of a few people have not only undermined the efforts of those who, for many years, have sought to engage scientifically with proponents of the psychosocial model but have tarnished the reputation of all ME/CFS sufferers.
Indeed. Now is that not what I have been saying? Is that not also a concern that I have shared? Whatever... It is nice to finally see an acknowledgement from this 'side' and source of the reality of the situation. That there were indeed 'wholly unacceptable actions of a few people'. One might say, 'Finally' and 'Thank the gods' that this at least has been forthcoming, of course you might not - you might want to see 'evidence' of these actions? I do not need them to know that they happened and the effect they have had: namely all the negative 'exposure' this has led to in the press and elsewhere in recent times.
If I was to say that I also agree these 'unacceptable actions' have 'undermined the efforts of those who...' would you also agree? If I was to suggest that he could have gone further and said that these actions have undermined all scientific engagement and involvement regardless of the opinions being advanced or expressed - would you agree? Perhaps you wouldn't.
Anyway... I'm in need of a rest. Been struggling with on-line ordering of popular toys for the munchkins. What a nightmare. And I thought shopping on line was meant to be easier!
Oh and David? I did indeed begin a riposte earlier today, but got sidelined - as I do - by a need to rest and then a need to shop. Well, not so much a need to shop, more of a.... oh hell - you'll have to take a raincheck