• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Phoenix Rising ME/CFS Forums

New posts

News, Research, and Advocacy

ME/CFS Events

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301
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6.5K
Threads
301
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Violeta
Zoom, Oct 4, 1:00 EDT, Research Roundtable

News and Research

ME/CFS and other health news and research
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16.3K
Messages
249.1K
Sub-forums:
  1. General ME/CFS News
  2. Latest ME/CFS Research
  3. Other Health News and Research
  4. Long COVID and Coronavirus
  5. Active Clinical Studies
  6. Phoenix Rising Articles
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16.3K
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249.1K
SWAlexander
Advocating the role of trained immunity in the pathogenesis of ME/CFS: a mini review

Advocacy

Advocacy, fundraising and petitions
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2.8K
Messages
51.8K
Sub-forums:
  1. Action Alerts and Advocacy
    1. Advocacy Projects
    2. Millions Missing Campaign
  2. Petitions
  3. Fundraising
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2.8K
Messages
51.8K
D
OMF Global StudyME Registry - both healthy and ill participants needed - easy to sign up

General ME/CFS Discussion

General ME/CFS Discussion

A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.
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5.5K
Messages
107.7K
Threads
5.5K
Messages
107.7K
C
New Book: Understanding ME/CFS & Strategies for Healing

Symptoms and Treatments

Symptoms

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6.2K
Messages
102.8K
Sub-forums:
  1. General Symptoms
  2. Post-Exertional Malaise and Fatigue
  3. Pain and Soreness
  4. Neurological and Sensory Sensitivity
  5. Cognition, Brain fog, and Emotion
  6. Sleep
  7. Peripheral Neuropathy & SFN
  8. Immunology, Inflammation, Allergies
  9. Hypersensitivity, Intolerance, MCS
  10. Dysautonomia: Problems Standing, OI, POTS
  11. Dysautonomia: Cardiovascular, Respiratory, etc.
  12. Hormones, HPA axis, etc.
  13. Gastrointestinal: IBS, SIBO & Urinary
  14. Skeleton, Skin, Hair, Teeth, and Nails
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6.2K
Messages
102.8K
SWAlexander
Treatment suggestions for UK patient

Treatment

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12.8K
Messages
235.1K
Sub-forums:
  1. General Treatment
  2. Antivirals, Antibiotics and Immune Modulators
    1. GcMAF
    2. Rituximab: News and Research
  3. Methylation, B12, Glutathione, etc.
  4. Hypersensitivity/MCS Treatment
  5. Gastrointestinal Treatment
  6. Alternative Therapies
Threads
12.8K
Messages
235.1K
A
Vaccine-triggered CFS linked to nasopharynx inflammation, and 81% cured or improved by treating this nasopharyngitis

Living with ME/CFS

Living with ME/CFS

Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only).
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1.8K
Messages
30.3K
Sub-forums:
  1. Information and Resources
  2. Lifestyle Management
  3. Finances, Work, Disability and Housing
  4. Disease Onset and Progression
  5. Spirituality and ME/CFS
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1.8K
Messages
30.3K
southwestforests
A Guide to Mobility Aids for CFS

Doctors and Diagnostics

Doctors, diagnostic guidelines, and lab tests
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3.1K
Messages
41.8K
Sub-forums:
  1. ME/CFS Doctors
  2. Diagnostic Guidelines and Laboratory Testing
  3. Genetic Testing and SNPs
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3.1K
Messages
41.8K
S
Has anyone achieved remission or recovery from treatment by any doctor?

Related Conditions

Comorbid Conditions, Differential Diagnoses, etc.

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2.3K
Messages
41K
Sub-forums:
  1. Fibromyalgia
  2. Lyme and Bacterial Infections
  3. Viral Infections
  4. Fungal Infection (Yeast, Candida, Mold)
  5. Mast Cell Activation (MCAS)
  6. Connective Tissue Disorders: Collagen, EDS, CCI
  7. Thyroid Dysfunction
  8. Adrenal Dysfunction
  9. Multiple Sclerosis
  10. Autoimmunity and Autoimmune Diseases
Threads
2.3K
Messages
41K
linusbert
Possibly a theory, low ph increases mcas activation

In Memory of ...

In Memory of ...

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78
Messages
1.5K
Threads
78
Messages
1.5K
Rufous McKinney
So sad to pass on this info to everyone regarding Andrew

Miscellaneous

Resources, Projects, and Archives

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66.6K
Sub-forums:
  1. Google Site Search
  2. XMRV Archives
    1. XMRV Research and Replication Studies
    2. XMRV Testing, Treatment and Transmission
    3. Media, Interviews, Blogs, Talks, Events about XMRV
  3. Content Team Resources
  4. Institute of Medicine (IOM) Government Contract
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2.5K
Messages
66.6K
Thinktank
Ampligen Experiences

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