- Messages
- 13
A very exciting meeting took place this weekend at the Bateman Horne Center in Salt Lake City. This meeting was a collaborative effort to bring together 11 expert ME/CFS clinicians to discuss diagnosis and treatment of this very prolific and debilitative disease. Their goals were as follows:
1. “ Advance collaboration across experienced US ME/CFS clinicians and propose a
mechanism to support this collaboration over time.”
2. “Provide perspective on what is needed in research from a clinician perspective based on clinical
insight or data. This could include possible illness subsets and significance of successful treatment
interventions and could be delivered as a report or potentially published in a peer-reviewed journal.
3. “Summarize key diagnostic methods and what is currently known about the underlying biology of the
disease and how it informs treatment practices in order to advance care of ME/CFS. The intent is to
produce a paper for publication in a peer-reviewed medical journal."
The 11 recognized experts at this meeting included:
Dr. Ben Natelson Neurologist, New York
Dr. Dan Peterson Internal Medicine, Incline Village, Nevada
Dr.Richard Podell Internal Medicine, Summit, New Jersey
Dr. Nancy Klimas Immunologist, Miami, Florida
Dr. Theresa Dowell Family Nurse Practitioner, Flagstaff, Arizona
Dr. Susan Levine Infectious Disease, New York, New York
Dr. Allison Bested Hematological Pathologist, Miami, Florida
Dr. John Chia Infectious Disease, Torrance, California
Dr. Chuck Lapp Internal Medicine, Raleigh, North Carolina
Dr. David Kaufman Internal Medicine, Mountain View, California
Dr. Lucinda Bateman Internal Medicine, Salt Lake City, Utah
Also in attendance was Dr. Ron Davis, Professor of Biochemistry and Genetics and Director of the Stanford Genome Technology Center. His vision is to discover causes, a molecular diagnosis, and cure for CFS. Also present were Mary Dimmock, co-author of “Thirty Years of Disdain, and Linda Tannenbaum founder of the Open Medical Foundation.
Gary, (Butydoc) , and I, (wife), had the privilege of attending this summit. This was the first time that all of these clinicians were gathered together in one place. They shared their information and experiences with one another in the hope of bringing this disease to the forefront so that more doctors will recognize and understand the illness and be able to better treat and care for the ME/CFS community. The plan for the future is for these experts to get together and brainstorm on an annual basis.
1. “ Advance collaboration across experienced US ME/CFS clinicians and propose a
mechanism to support this collaboration over time.”
2. “Provide perspective on what is needed in research from a clinician perspective based on clinical
insight or data. This could include possible illness subsets and significance of successful treatment
interventions and could be delivered as a report or potentially published in a peer-reviewed journal.
3. “Summarize key diagnostic methods and what is currently known about the underlying biology of the
disease and how it informs treatment practices in order to advance care of ME/CFS. The intent is to
produce a paper for publication in a peer-reviewed medical journal."
The 11 recognized experts at this meeting included:
Dr. Ben Natelson Neurologist, New York
Dr. Dan Peterson Internal Medicine, Incline Village, Nevada
Dr.Richard Podell Internal Medicine, Summit, New Jersey
Dr. Nancy Klimas Immunologist, Miami, Florida
Dr. Theresa Dowell Family Nurse Practitioner, Flagstaff, Arizona
Dr. Susan Levine Infectious Disease, New York, New York
Dr. Allison Bested Hematological Pathologist, Miami, Florida
Dr. John Chia Infectious Disease, Torrance, California
Dr. Chuck Lapp Internal Medicine, Raleigh, North Carolina
Dr. David Kaufman Internal Medicine, Mountain View, California
Dr. Lucinda Bateman Internal Medicine, Salt Lake City, Utah
Also in attendance was Dr. Ron Davis, Professor of Biochemistry and Genetics and Director of the Stanford Genome Technology Center. His vision is to discover causes, a molecular diagnosis, and cure for CFS. Also present were Mary Dimmock, co-author of “Thirty Years of Disdain, and Linda Tannenbaum founder of the Open Medical Foundation.
Gary, (Butydoc) , and I, (wife), had the privilege of attending this summit. This was the first time that all of these clinicians were gathered together in one place. They shared their information and experiences with one another in the hope of bringing this disease to the forefront so that more doctors will recognize and understand the illness and be able to better treat and care for the ME/CFS community. The plan for the future is for these experts to get together and brainstorm on an annual basis.