Gingergrrl
Senior Member
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alison vickery
I personally do not think the alison vickery website has accurate info re: MCAS and some of her diet recommendations are things that are not low histamine and would have probably killed me if I'd eaten them back in 2015.
The best food/diet website I have ever found for MCAS is the "SIGHI" diet from Switzerland which has everything translated into English (and other languages). I no longer have any food restrictions but I followed the SIGHI diet religiously for about 1.5 yrs.
gingergrrl is one of the best sources of info on extreme mast cell problems... She sees Dr Kaufman (who's next on my list..), but there are other docs, too.
I actually also have an MCAS specialist and am happy to give his name by PM although he remains closed to new patients at present.
Not sure how much the above would help for serious MCAS (ie, emergency room visits w epinephrine shots, etc.)..
Luckily I only went to the ER once (when I was admitted to the hospital for a week by Dr. K) b/c I had reached the point of becoming allergic to all food but water back in 2015. I have an EpiPen but have never had to use it b/c back at that time, my rescue med, Atarax, worked so well for me. Without the Atarax, there were a few episodes that I think would have progressed to needing Epi.