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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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East Coast Doctors

jpcv

Senior Member
Messages
386
Location
SE coast, Brazil
Hi folks, I'm planning to travel to USA to see some physician who has experience in treating patients with ME, probably in the first months of next year, the East Coast being the easiest place to go.
Any sugestions of Doctors ? Susan Levine in NY or Nancy Klimas in Miami ?
Anyone gere treating with them?
Thank you.
 

Hajnalka

Senior Member
Messages
910
Location
Germany
Good luck @jpcv and I'd be very interested to hear about your experience, if you'd like to share. Save travels! I have the same problem, that the east coast of the US would be much more comfortable to reach from Germany, but I think most ME/CFS specialists are at the west coast.
 

nryanh94

Senior Member
Messages
165
For anyone who has been to Hunter Hopkins, do they offer antivirals for people who test positive in EBV/HHV6? What is their treatment approach outside of “staying within the energy enevelope”?
 

Vineyard1

Senior Member
Messages
109
For anyone who has been to Hunter Hopkins, do they offer antivirals for people who test positive in EBV/HHV6? What is their treatment approach outside of “staying within the energy enevelope”?

They do tilt table testing and treatment, if indicated.
They do anti virals, if indicated
Blood work inclusive of immune testing-recommended IVIG for me
Overall recommendations for.mitochondrial support, inflammation etc.
Offer IV support ,when traveling distance, if indicated, during visit as they know it can cause hypovolemia, dehydration, weakness etc.
 

rel8ted

Senior Member
Messages
451
Location
Usa
For anyone who has been to Hunter Hopkins, do they offer antivirals for people who test positive in EBV/HHV6? What is their treatment approach outside of “staying within the energy enevelope”?
There is a trend toward functional medicine....